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采用系统方法制定增加 COPD 患者参与肺康复的用户需求。

A systems approach to developing user requirements for increased pulmonary rehabilitation uptake by COPD patients.

机构信息

Cambridge University Hospitals NHS Foundation Trust, Cambridge, UK.

Department of Engineering, University of Cambridge, Cambridge, UK.

出版信息

NPJ Prim Care Respir Med. 2024 Jul 16;34(1):20. doi: 10.1038/s41533-024-00370-1.

DOI:10.1038/s41533-024-00370-1
PMID:39013894
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11252258/
Abstract

Chronic Obstructive Pulmonary Disease is a progressive lung disease associated with anxiety, depression, and reduced health-related quality of life. Pulmonary rehabilitation (PR) is a cost-effective and transformative treatment, but 31% of referred patients do not take up their PR appointment. The study aimed to develop user requirements for an intervention to increase PR uptake. A systems approach, the Engineering Better Care framework, was used to develop a system map of the PR pathway, translate evidence-based user needs into user requirements, and validate the user requirements in a stakeholder workshop. Eight user requirements addressed patient and health care practitioner needs to understand what PR entails, understand the benefits of PR and have positive conversations about PR to address patient concerns. The solution-independent user requirements can be applied to the development of any intervention sharing similar goals. The study demonstrates potential in taking a systems approach to more challenges within respiratory medicine.

摘要

慢性阻塞性肺疾病是一种与焦虑、抑郁和降低健康相关生活质量相关的进行性肺部疾病。肺康复(PR)是一种具有成本效益和变革性的治疗方法,但有 31%的转诊患者未接受 PR 预约。本研究旨在为提高 PR 参与度的干预措施制定用户需求。采用系统方法,即更好地护理工程框架,制定 PR 途径的系统图,将基于证据的用户需求转化为用户需求,并在利益相关者研讨会上验证用户需求。八项用户需求解决了患者和医疗保健从业者的需求,以了解 PR 包含的内容、了解 PR 的益处,并就 PR 进行积极的对话,以解决患者的担忧。独立于解决方案的用户需求可应用于开发具有相似目标的任何干预措施。该研究表明,在呼吸系统医学领域,采用系统方法解决更多挑战具有潜力。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e1b/11252258/26b576399189/41533_2024_370_Fig5_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e1b/11252258/90ed400d5e46/41533_2024_370_Fig1_HTML.jpg
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https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e1b/11252258/cd7e7db4e262/41533_2024_370_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e1b/11252258/26b576399189/41533_2024_370_Fig5_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e1b/11252258/90ed400d5e46/41533_2024_370_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e1b/11252258/510051cba0bf/41533_2024_370_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e1b/11252258/86f922abf920/41533_2024_370_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e1b/11252258/cd7e7db4e262/41533_2024_370_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e1b/11252258/26b576399189/41533_2024_370_Fig5_HTML.jpg

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本文引用的文献

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A Systematic Review of the Effectiveness of Interventions to Promote Referral; Adherence; and Uptake of Pulmonary Rehabilitation for Patients with Chronic Obstructive Pulmonary Disease.系统评价促进慢性阻塞性肺疾病患者转诊、遵医行为和肺康复治疗的干预措施的有效性。
Int J Chron Obstruct Pulmon Dis. 2023 Jul 31;18:1637-1654. doi: 10.2147/COPD.S396317. eCollection 2023.
2
Systems approach to health service design, delivery and improvement: a systematic review and meta-analysis.系统方法在卫生服务设计、提供和改进中的应用:系统评价和荟萃分析。
BMJ Open. 2021 Jan 19;11(1):e037667. doi: 10.1136/bmjopen-2020-037667.
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Pulmonary rehabilitation referral and uptake from primary care for people living with COPD: a mixed-methods study.
慢性阻塞性肺疾病患者从初级保健机构获得肺康复转诊及接受情况:一项混合方法研究
ERJ Open Res. 2020 Feb 17;6(1). doi: 10.1183/23120541.00219-2019. eCollection 2020 Jan.
4
COPD patients' experiences, self-reported needs, and needs-driven strategies to cope with self-management.COPD 患者的体验、自我报告的需求以及应对自我管理的需求驱动策略。
Int J Chron Obstruct Pulmon Dis. 2019 May 16;14:1033-1043. doi: 10.2147/COPD.S201068. eCollection 2019.
5
A systems approach to healthcare: from thinking to -practice.一种医疗保健的系统方法:从理念到实践。
Future Healthc J. 2018 Oct;5(3):151-155. doi: 10.7861/futurehosp.5-3-151.
6
What matters to people with COPD: outputs from Working Together for Change.COPD 患者关心的问题:共创变革的产出。
NPJ Prim Care Respir Med. 2019 Apr 12;29(1):11. doi: 10.1038/s41533-019-0124-z.
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Developing an intervention to increase REferral and uptake TO pulmonary REhabilitation in primary care in patients with chronic obstructive pulmonary disease (the REsTORE study): mixed methods study protocol.开发一项干预措施,以增加慢性阻塞性肺疾病患者在初级保健中接受肺康复转诊和参与的机会(REsTORE 研究):混合方法研究方案。
BMJ Open. 2019 Jan 21;9(1):e024806. doi: 10.1136/bmjopen-2018-024806.
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Interventions to increase referral and uptake to pulmonary rehabilitation in people with COPD: a systematic review.提高慢性阻塞性肺疾病患者肺康复转诊率和接受率的干预措施:一项系统综述
Int J Chron Obstruct Pulmon Dis. 2018 Oct 29;13:3571-3586. doi: 10.2147/COPD.S172239. eCollection 2018.
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