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公民对德国国家电子健康记录采用选择退出方法的看法:一项小规模定性研究。

Citizen Views on an Opt-Out Approach to National Electronic Health Records in Germany: A Small-Scale Qualitative Study.

机构信息

Digital Society Initiative (DSI) and Institute for Implementation Science in Healthcare, University of Zurich, Zürich, Switzerland.

Technical University of Berlin, Berlin, Germany.

出版信息

Int J Public Health. 2024 Jul 3;69:1607288. doi: 10.3389/ijph.2024.1607288. eCollection 2024.

DOI:10.3389/ijph.2024.1607288
PMID:39022444
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11251894/
Abstract

OBJECTIVES

Electronic health records (German: elektronische Patientenakte - ePA) are an important healthcare tool. However, in Germany, current participation remains low for their national ePA. To rectify this, the German government recently adopted an opt-out approach to their national ePA system. The objective of this study is to investigate and provide a brief overview of German public attitudes towards this approach to inform policymakers with evidence-based insights.

METHODS

Four public focus groups were conducted with 12 German citizens to discuss their opinions on the German governments new opt-out approach to the ePA.

RESULTS

Three major thematic categories were identified (Contributors to Opt-Out Implementation, Barriers to Opt-Out Implementation, and Contingent Factors) to describe citizen views on the opt-out approach for the ePA.

CONCLUSION

The public is generally supportive of an opt-out approach to ePAs in Germany, as they see the benefits ePAs can provide to German society; but they are skeptical on how successful this approach might be due to extant issues that policymakers must be aware of in order to successfully implement an opt-out approach for Germany's national ePA system.

摘要

目的

电子健康记录(德语:elektronische Patientenakte - ePA)是一种重要的医疗保健工具。然而,在德国,目前全国范围内电子健康记录的参与率仍然很低。为了解决这个问题,德国政府最近对其全国性的电子健康记录系统采取了一种选择退出的方法。本研究的目的是调查并简要概述德国公众对这种方法的态度,为政策制定者提供基于证据的见解。

方法

本研究采用了 4 个公众焦点小组,共 12 名德国公民参与讨论,以了解他们对德国政府新的电子健康记录选择退出方法的看法。

结果

确定了三个主要的主题类别(选择退出实施的促成因素、选择退出实施的障碍、以及偶然因素),以描述公民对电子健康记录选择退出方法的看法。

结论

公众普遍支持德国对电子健康记录采取选择退出的方法,因为他们看到了电子健康记录可以为德国社会带来的好处;但他们对这种方法的成功实施持怀疑态度,因为政策制定者必须意识到现有的问题,以便成功地为德国的国家电子健康记录系统实施选择退出方法。

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