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[帕金森病患者护理中聊天信使的使用]

[Chat messenger use in the care of patients with Parkinson's disease].

作者信息

Naegele A, Schwaninger I, Toenges L, Eggers C, Warnecke T, Weigand C, Klucken J

机构信息

dmac Medical Valley Digital Health Application Center GmbH, Bamberg, Deutschland.

Digital Medicine Group, Luxembourg Centre for Systems Biomedicine (LCSB), University of Luxembourg, Esch-sur-Alzette, Luxemburg.

出版信息

Nervenarzt. 2024 Aug;95(8):714-720. doi: 10.1007/s00115-024-01686-6. Epub 2024 Jul 22.

DOI:10.1007/s00115-024-01686-6
PMID:39037578
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11297055/
Abstract

BACKGROUND

The demand for chat messaging apps for communication between physicians, therapists and patients is increasing. The expectations for this form of communication and uncertainties regarding introduction and use are heterogeneous.

OBJECTIVE

The implementation of chat messengers in the care of patients with Parkinson's disease should be facilitated by recommendations regarding introduction and usage.

METHODS

Semi-structured interviews with neurologists and physiotherapists were conducted to capture the expectations and needs regarding the use of chat messengers. From the data analysis, recommendations were derived.

RESULTS

The expectations for technical functionality exceeded the chat messenger functions. This concerns, e.g., the connection of the chat messenger to the electronic patient file. There is a great deal of uncertainty, particularly when it comes to the applicable General Data Protection Regulations (GDPR). The recommendations relating to the use of chat messengers, data protection aspects, the design of such tools and methodological considerations can help to implement the tool as an additional communication channel.

CONCLUSION

Practical recommendations regarding functionality, the use of chat messengers in everyday life and in relation to data protection are derived from the results. By improving knowledge, physicians and therapists can contribute to the successful establishment of chat messengers as an additional communication tool.

摘要

背景

医生、治疗师与患者之间用于交流的聊天消息应用程序的需求正在增加。对于这种交流形式的期望以及引入和使用方面的不确定性是多种多样的。

目的

关于引入和使用的建议应有助于在帕金森病患者护理中实施聊天信使。

方法

对神经科医生和物理治疗师进行半结构化访谈,以了解对使用聊天信使的期望和需求。通过数据分析得出建议。

结果

对技术功能的期望超出了聊天信使功能。这涉及到,例如,聊天信使与电子患者档案的连接。存在很大的不确定性,尤其是在适用的《通用数据保护条例》(GDPR)方面。关于聊天信使的使用、数据保护方面、此类工具的设计以及方法学考虑的建议有助于将该工具作为额外的交流渠道来实施。

结论

从结果中得出了关于功能、聊天信使在日常生活中的使用以及数据保护的实用建议。通过提高认识,医生和治疗师可以为成功将聊天信使确立为额外的交流工具做出贡献。

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本文引用的文献

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Co-Designing Digital Technologies for Improving Clinical Care in People with Parkinson's Disease: What Did We Learn?共同设计数字技术以改善帕金森病患者的临床护理:我们学到了什么?
Sensors (Basel). 2023 May 22;23(10):4957. doi: 10.3390/s23104957.
2
How People with Parkinson's Disease and Health Care Professionals Wish to Partner in Care Using eHealth: Co-Design Study.帕金森病患者和医疗保健专业人员希望如何通过电子健康进行合作护理:共同设计研究。
J Med Internet Res. 2020 Sep 21;22(9):e19195. doi: 10.2196/19195.
3
The ideal medical practice model: improving efficiency, quality and the doctor-patient relationship.理想的医疗实践模式:提高效率、质量以及医患关系。
Fam Pract Manag. 2007 Sep;14(8):20-4.