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超越问题:重新审视父母的不寻常要求。

Beyond the Question: Reexamining a Parent's Unusual Request.

机构信息

Division of Neonatology, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.

Department of Medical Ethics and Health Policy, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania.

出版信息

Pediatrics. 2024 Aug 1;154(2). doi: 10.1542/peds.2023-064954.

Abstract

Pediatricians sometimes think about medical ethics as the field of determining right and wrong in in answering difficult moral questions that occur at the bedside. But an emphasis on rapidly determining right and wrong when faced with ethical dilemmas can lead clinicians to miss important issues underlying both the question and their approach to answering it. We argue that ethical reflection is not merely a process of getting to the right answer but also a way to probe beyond the original question to better understand the stakeholders' perspectives and priorities. In this Ethics Rounds, we present the case of an infant born at 23 weeks' gestation who initially faced numerous complications of prematurity, but has progressed beyond acute critical illness. His father requests a transition to palliative care at a point this option would not typically be offered. The straightforward response to this father's request is "no." However, we reexamine the father's request from the perspective of a neonatologist, a clinical ethicist, and a conflict mediator. Why is the father making this request? Why do clinicians feel rushed to respond? The authors discuss how elements of surprise and implicit biases can push clinicians to hasty answers. We introduce tools used in clinical ethics consultation and conflict mediation that can facilitate alternative responses from the clinical team. Employing the "Ladder of Inference," ascertaining the "View from Everywhere," and differentiating positions from interests can help clinicians explore the context of ethical questions and lead to more fruitful resolutions.

摘要

儿科医生有时会将医学伦理学视为一个领域,用于确定在床边遇到困难的道德问题时的对错。但是,当面对伦理困境时,过分强调快速确定对错可能会导致临床医生忽略问题和他们回答问题的方法背后的重要问题。我们认为,伦理反思不仅仅是一个得出正确答案的过程,也是一种超越原始问题的方法,以更好地理解利益相关者的观点和优先事项。在本次伦理研讨中,我们呈现了一个 23 周龄早产儿的病例,该婴儿最初面临许多早产儿并发症,但已从急性重症疾病中康复。他的父亲要求在通常不提供该选择的情况下过渡到姑息治疗。对这位父亲的请求的直接回应是“否”。然而,我们从新生儿科医生、临床伦理学家和冲突调解人的角度重新审视了父亲的请求。为什么父亲提出这个请求?为什么临床医生感到急于回应?作者讨论了惊讶和隐含偏见的因素如何促使临床医生仓促做出回答。我们介绍了临床伦理咨询和冲突调解中使用的工具,这些工具可以促进临床团队的替代反应。使用“推理阶梯”、确定“从各个角度看”以及区分立场和利益,可以帮助临床医生探索伦理问题的背景,并导致更富有成效的解决方案。

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