Hejl Julie L, Hulgaard Ditte R, Rasmussen Anne Sofie D, Larsen Lærke Emilie N, Rask Charlotte U
Department of Child and Adolescent Psychiatry, Aarhus University Hospital Psychiatry, Aarhus, Denmark.
Department of Clinical Medicine, Aarhus University, Aarhus, Denmark.
Clin Child Psychol Psychiatry. 2024 Jul 23:13591045241267129. doi: 10.1177/13591045241267129.
Children with congenital heart disease are more likely to receive special educational services in schools and have an increased risk of mental health issues. We explored the lived experiences of parents caring for a child with heart disease and concurrent mental health issues in Denmark. Semi-structured interviews with ten parents (age 39-57 years) to these children (age 5-17 years) were analysed using interpretative phenomenological analysis. Three Group Experiential Themes (GETs) were generated from the analysis: The first GET, Parental roles and caring behaviours, described parental struggles of fulfilling their parenting role ideals and experiences with stigmatization of MHI. GET two, Parental reflections on their illness explanations, portrayed how parents utilize different illness explanations to make sense of their child's MHI. GET three, Differences in access to help and support, captured how the CHD affected overall access to mental health support. The results may inform various topics of importance for health professionals to address in their clinical encounters with these families.
患有先天性心脏病的儿童在学校更有可能接受特殊教育服务，且出现心理健康问题的风险增加。我们探究了丹麦照顾患有心脏病及并发心理健康问题儿童的家长的生活经历。对十位这些孩子（年龄5至17岁）的家长（年龄39至57岁）进行了半结构化访谈，并采用解释现象学分析方法进行分析。分析得出了三个群体体验主题（GETs）：第一个GET，父母角色与照顾行为，描述了父母在履行育儿角色理想方面的挣扎以及对儿童心理健康问题污名化的经历。第二个GET，父母对疾病解释的反思，描绘了父母如何利用不同的疾病解释来理解孩子的心理健康问题。第三个GET，获得帮助和支持的差异，记录了先天性心脏病如何影响心理健康支持的总体可及性。研究结果可能为健康专业人员在与这些家庭的临床接触中需要解决的各种重要话题提供参考。
