School of Health and Welfare, Dalarna University, Falun, Sweden.
Population Research Centre, Faculty of Spatial Sciences, University of Groningen, Groningen, Netherlands.
JMIR Res Protoc. 2024 Jul 23;13:e56996. doi: 10.2196/56996.
Each year, more than 1.5 million people in Europe have a stroke, and many experience disabilities leading to activity and participation restrictions. Home-based rehabilitation is the recommended approach for stroke rehabilitation, in line with the international shift to integrated care. Despite this, rehabilitation often focuses on the person's physical functions, not the whole life situation and opportunities to live an active life. Given that rehabilitation today is often provided in the person's home, there is a need to develop new models that consider the rehabilitation process as situated in the everyday living environment of persons with stroke. This project is grounded in experiences from our ongoing research, where we study the importance of the home environment for health and participation among persons with stroke, rehabilitated at home. This research has shown unmet needs, which lead to suboptimal rehabilitation outcomes. There is a need for studies on how to use environmental resources to optimize stroke rehabilitation in the home setting.
The overarching objective of the project is to develop a new practice model for rehabilitation where the needs of the person are the starting point and where the environment is considered.
The project will be conducted in partnership with persons with stroke, significant others, health care professionals, and care managers. Results from a literature review will form the base for interviews with the stakeholders, followed by co-designing workshops aiming to create a new practice model. Focus groups will be held to refine the outcome of the workshops to a practice model.
This 4-year project commenced in January 2023 and will continue until December 2026. The results of the literature review are, as of April 2024, currently being analyzed. The ethics application for the interviews and co-design phase was approved in October 2023 and data collection is ongoing during spring 2024. We aim to develop a practice model with stakeholders and refine it together with care managers and decision makers. The outcome is a new practice model and implementation plan, which will be achieved in autumn 2026.
The project contributes with a prominent missing puzzle to optimize the rehabilitation process by adding a strong focus on user engagement combined with integrating different aspects of the environment. The goal is to improve quality of life and increase reintegration in society for the large group of people living with the aftermath of a stroke. By co-designing with multiple stakeholders, we expect the model to be feasible and sustainable. The knowledge from the project will also contribute to an increased awareness of the importance of the physical environment for sustainable health care. The findings will lay the foundation for future upscaling initiatives.
INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/56996.
欧洲每年有超过 150 万人患有中风，许多人因此残疾，导致活动和参与受限。家庭康复是中风康复的推荐方法，符合国际综合护理的转变。尽管如此，康复通常侧重于人的身体功能，而不是整个人的生活状况和积极生活的机会。鉴于如今的康复通常在患者家中进行，因此需要开发新的模型，将康复过程视为中风患者日常生活环境的一部分。该项目基于我们正在进行的研究中的经验，我们研究了家庭环境对中风患者健康和参与的重要性，这些患者在家中接受康复治疗。这项研究表明存在未满足的需求，这导致康复效果不理想。需要研究如何利用环境资源在家庭环境中优化中风康复。
该项目的总体目标是开发一种新的康复实践模式，以患者的需求为起点，同时考虑环境因素。
该项目将与中风患者、重要他人、医疗保健专业人员和护理经理合作进行。文献综述的结果将作为与利益相关者进行访谈的基础，然后进行共同设计研讨会，旨在创建一个新的实践模式。将举行焦点小组会议，以将研讨会的结果提炼为实践模式。
该为期 4 年的项目于 2023 年 1 月启动，将持续到 2026 年 12 月。截至 2024 年 4 月，文献综述的结果正在进行分析。访谈和共同设计阶段的伦理申请已于 2023 年 10 月获得批准，数据收集正在 2024 年春季进行。我们的目标是与利益相关者一起开发一个实践模型，并与护理经理和决策者一起共同完善它。最终成果是一个新的实践模型和实施计划，将于 2026 年秋季完成。
该项目通过将用户参与与整合环境的各个方面相结合，为优化康复过程做出了重要贡献。目标是改善大量中风后患者的生活质量并促进他们重新融入社会。通过与多个利益相关者共同设计，我们预计该模型将具有可行性和可持续性。该项目的知识也将有助于提高对物理环境对可持续医疗保健重要性的认识。研究结果将为未来的扩大规模举措奠定基础。
国际注册报告标识符（IRRID）：DERR1-10.2196/56996。
