Strupp Julia, Kasdorf Alina, Karneboge Jonas, Voltz Raymond
Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany.
Department of Psychology, Psychological Aging Research (PAR), Faculty V: School of Life Sciences, University of Siegen, Siegen, Germany.
Palliat Med Rep. 2024 May 15;5(1):201-205. doi: 10.1089/pmr.2024.0009. eCollection 2024.
Dying at home poses many challenges for family carers and is particularly distressing for those with limited social support. In addition to financial hardship, this perceived burden may be a deciding factor in providing care at home.
To explore what motivates people to provide care at home until death.
Qualitative interviews with 43 family carers of deceased patients about factors enabling death at home. Interviews were audio-recorded, transcribed verbatim, and analyzed using content analysis.
Participants who rated their end-of-life experience positively reported that they particularly benefited from encouraging feedback and gratitude from their dying loved ones, as well as appraisal support. It takes courage to care for someone at home and to feel responsible for them. These themes made the participants' home care efforts meaningful, gave them confidence in what they were doing and helped maintain their motivation to care.
Encouraging feedback and appraisal support are both minimally invasive techniques with maximum impact for continuing care at home.
在家中离世给家庭照料者带来诸多挑战，对于那些社会支持有限的人来说尤其痛苦。除了经济困难外，这种感知到的负担可能是决定是否在家中提供照料的一个因素。
探讨促使人们在家中提供照料直至亲人离世的动机。
对43名已故患者的家庭照料者进行定性访谈，了解使患者在家中离世的因素。访谈进行了录音，逐字转录，并采用内容分析法进行分析。
对临终体验给予积极评价的参与者报告称，他们特别受益于临终亲人给予的鼓励性反馈和感激之情，以及评价性支持。在家中照料某人并对其负责需要勇气。这些主题使参与者的家庭照料努力变得有意义，让他们对自己所做的事情充满信心，并有助于维持他们的照料动力。
鼓励性反馈和评价性支持都是微创技术，对在家中持续提供照料具有最大影响。
