Rivera-Sepulveda Andrea, Hakim Monica, Aronson Lauren, Glass Todd F, Blake Kathryn, Alexander Kenneth, Schrimshaw Eric W
Division of Emergency Medicine and Urgent Care, Nemours Children's Health, Orlando, FL, USA.
University of Central Florida College of Medicine, Nemours Children's Health Department of Pediatrics, Orlando, FL, USA.
J Patient Exp. 2024 Jul 23;11:23743735241257384. doi: 10.1177/23743735241257384. eCollection 2024.
The factors influencing caregivers' understanding of pediatric respiratory diseases, such as bronchiolitis, can guide patient care and the acceptability of treatment methods within the healthcare system. This study aims to identify illness perceptions and perform a needs assessment among caregivers of children diagnosed with respiratory diseases. This is a prospective, cross-sectional, questionnaire-driven study of a representative sample of caregivers whose children had an acute respiratory illness. The telephone-administered questionnaire was comprised of (1) demographic items; (2) illness perception questionnaire-revised (IPQ-R); and (3) items about personal barriers, the latter 2 of which employed a 5-point Likert response. Cronbach's alpha () was used to measure the internal consistency reliability for each item within the IPQ-R. The Pearson 2-tailed correlation coefficient was used to correlate questionnaire items. We included 75 caregivers whose children have been diagnosed with bronchiolitis (51%), reactive airway disease (RAD) (35%), asthma (33%), and wheezing (44%). We found no significance between the child's diagnosis and the site of recruitment. The most important components of the illness perception were illness coherence (=0.849), psychological attributions (=0.903), and barriers to diagnosis (=0.633). Understanding caregivers' perceptions of respiratory diseases will lead to better treatment acceptance. We must clarify the terms used to define bronchiolitis from viral-induced wheezing, RAD, and the first asthma episode in older infants. Identifying caregivers' gaps in knowledge will help establish a cohesive approach to personalized treatment of respiratory diseases in children and their diagnosis.
影响护理人员对小儿呼吸道疾病（如细支气管炎）理解的因素，能够指导医疗系统内的患者护理及治疗方法的可接受性。本研究旨在识别疾病认知并对诊断为呼吸道疾病儿童的护理人员进行需求评估。这是一项针对患有急性呼吸道疾病儿童的护理人员代表性样本的前瞻性横断面问卷调查研究。电话调查问卷包括：（1）人口统计学项目；（2）修订后的疾病认知问卷（IPQ-R）；以及（3）关于个人障碍的项目，其中后两项采用5点李克特量表回答。Cronbach's α用于测量IPQ-R中各项目的内部一致性信度。Pearson双尾相关系数用于关联问卷项目。我们纳入了75名护理人员，其子女被诊断为细支气管炎（51%）、反应性气道疾病（RAD）（35%）、哮喘（33%）和喘息（44%）。我们发现儿童诊断与招募地点之间无显著差异。疾病认知的最重要组成部分是疾病连贯性（=0.849）、心理归因（=0.903）和诊断障碍（=0.633）。了解护理人员对呼吸道疾病的认知将提高对治疗的接受度。我们必须明确用于区分细支气管炎与病毒诱发的喘息、RAD以及大龄婴儿首次哮喘发作的术语。识别护理人员知识方面的差距将有助于建立一种连贯的方法，用于儿童呼吸道疾病的个性化治疗及其诊断。
