Campbell Alyson, Hartling Lisa, Louie-Poon Samantha, Scott Shannon D
Faculty of Nursing, University of Alberta, Edmonton, Canada.
Department of Pediatrics, University of Alberta, Edmonton, Canada.
J Patient Exp. 2020 Dec;7(6):1362-1368. doi: 10.1177/2374373520924526. Epub 2020 Jul 7.
Bronchiolitis is an acute lower respiratory infection, with significant impacts on children and families and strains on the health care system. Understanding parents' experiences and information needs caring for a child with bronchiolitis is crucial to highlight misconceptions or issues contributing to the high burden. The objective of this qualitative study was to describe parents' experiences caring for a child with bronchiolitis.
Qualitative description guided this study. Participants were recruited from the Stollery Children's Hospital emergency department (ED), a specialized pediatric ED in a major Canadian urban center. Semi-structured interviews were conducted with 15 parents.
Five major themes were identified: (a) their children's symptoms and behaviors, (b) bronchiolitis affects the entire family, (c) factors influencing parent's decision to go to ED, (d) ED experience for parents and their children, and (e) bronchiolitis treatment and management. Interviews revealed bronchiolitis has significant effects on both children and families and parents are generally unaware of bronchiolitis symptoms, treatment, and management.
Our study highlights that parents have knowledge deficits when it comes to recognizing the presence and severity of bronchiolitis symptoms. Parents would benefit from having more evidence-based resources to enhance their knowledge about the nature of bronchiolitis.
细支气管炎是一种急性下呼吸道感染，对儿童及其家庭有重大影响，并给医疗保健系统带来压力。了解父母照顾患细支气管炎儿童的经历和信息需求，对于凸显导致高负担的误解或问题至关重要。这项定性研究的目的是描述父母照顾患细支气管炎儿童的经历。
本研究采用定性描述方法。参与者从斯托里儿童医院急诊科招募，该急诊科是加拿大一个主要城市中心的一家专业儿科急诊科。对15名父母进行了半结构化访谈。
确定了五个主要主题：（a）孩子的症状和行为，（b）细支气管炎影响整个家庭，（c）影响父母决定前往急诊科的因素，（d）父母及其孩子在急诊科的经历，以及（e）细支气管炎的治疗和管理。访谈显示，细支气管炎对儿童和家庭都有重大影响，而且父母通常不了解细支气管炎的症状、治疗和管理。
我们的研究强调，父母在识别细支气管炎症状的存在和严重程度方面存在知识欠缺。父母若能获得更多基于证据的资源来增强他们对细支气管炎性质的了解，将会受益。
