Igdır University Faculty of Health Sciences, Department of Pediatric Nursing, Igdır, Turkey.
Kafkas University Faculty of Health Sciences, Department of Pediatric Nursing, Kars, Turkey.
J Pediatr Nurs. 2024 Sep-Oct;78:e323-e329. doi: 10.1016/j.pedn.2024.07.021. Epub 2024 Jul 25.
The purpose of this study was to report on the mediator role of parenting stress in the effect of stigmatization on burnout in parents of children with autism.
A descriptive and correlational research design was used in this study. The sample consisted of 146 parents who had children diagnosed with autism spectrum disorder and volunteered to participate in the study. A "Personal Information Form", the "Parents' Internalized Stigma of Mental Illness Scale", the "Parenting Stress Scale", and the "Parental Burnout Assessment" were used for data collection.
In the study, it was observed that the feeling of stigmatization increased as the education level increased and that variables such as the ages of the parent and the child and an increase in the number of children requiring care also affected the feeling of stigmatization. Parenting stress was found to have a "partial mediator" role in the effect of stigmatization on parental burnout.
Our findings emphasized the heterogeneous correlation between stigmatization, burnout, and stress levels of parents of children with autism.
This study has key implications for pediatric nursing practices. Pediatric nurses can educate the community about autism, what issues should be considered, and how to support parents. Furthermore, nurses can introduce parents who have children with autism to each other and direct them to parent-child activities that can regulate their moods.
本研究旨在报告父母压力在污名化对自闭症儿童父母倦怠的影响中的中介作用。
本研究采用描述性和相关性研究设计。样本由 146 名被诊断为自闭症谱系障碍的儿童的家长组成，他们自愿参加了这项研究。使用了“个人信息表”、“家长内化精神疾病耻辱感量表”、“父母压力量表”和“父母倦怠评估”来收集数据。
在研究中，我们观察到，随着教育水平的提高，污名化的感觉增加，而父母和孩子的年龄以及需要照顾的孩子数量的增加等变量也会影响污名化的感觉。研究发现，父母压力在污名化对父母倦怠的影响中起到了“部分中介”的作用。
我们的发现强调了自闭症儿童父母的污名化、倦怠和压力水平之间的异质相关性。
本研究对儿科护理实践具有重要意义。儿科护士可以向社区宣传有关自闭症的知识，包括需要考虑的问题以及如何支持家长。此外，护士可以为有自闭症儿童的家长互相介绍，并引导他们参加可以调节情绪的亲子活动。
