James Aimee S, Nodora Jesse, Maki Julia, Harlow Bernard L, Low Lisa Kane, Coyne-Beasley Tamera, Cunningham Shayna D, El-Fahmawi Ayah, Klusaritz Heather, Lipman Terri H, Simon Melissa, Hebert-Beirne Jeni
Division of Public Health Sciences, Washington University in St. Louis School of Medicine, St. Louis, MO.
University of California-San Diego, Department of Family Medicine and Public Health, La Jolla, CA.
J Community Engagem Scholarsh. 2024;16(2). doi: 10.54656/jces.v16i2.496.
Community engagement has been named a research priority by the National Institutes of Health, and scholars are calling for community engagement as an approach to address racism and equity in science. Robust community-engaged research can improve research quality, increase inclusion of traditionally marginalized populations, broaden the impact of findings on real-life situations, and is particularly valuable for underexplored research topics. The goal of this paper is to describe lessons learned and best practices that emerged from community engagement in a multi-institution population health research consortium. We describe how a foundation was laid to enable community-engaged research activities in the consortium, using a staged and stepped process to build and embed multi-level community-engaged research approaches.. We staged our development to facilitate (a) awareness of community engagement among consortium members, (b) the building of solidarity and alliances, and (c) the initiation of long-term engagement to allow for meaningful research translation. Our stepped process involved strategic planning; building momentum; institutionalizing engagement into the consortium infrastructure; and developing, implementing, and evaluating a plan. We moved from informal, one-time community interactions to systematic, formalized, capacity-building reciprocal engagement. We share our speed bumps and troubleshooting that inform our recommendations for other large research consortia-including investing the time it takes to build up community engagement capacity, acknowledging and drawing on strengths of the communities of interest, assuring a strong infrastructure of accountability for community engagement, and grounding the work in anti-racist principles.
社区参与已被美国国立卫生研究院列为研究重点,学者们呼吁将社区参与作为解决科学领域种族主义和公平问题的一种方法。强有力的社区参与研究可以提高研究质量,增加对传统上被边缘化人群的纳入,扩大研究结果对现实生活情况的影响,对于未充分探索的研究主题尤其有价值。本文的目的是描述在一个多机构人群健康研究联盟中社区参与所获得的经验教训和最佳实践。我们描述了如何奠定基础,以便在联盟中开展社区参与研究活动,采用分阶段、逐步推进的过程来构建和融入多层次的社区参与研究方法。我们分阶段进行发展,以促进(a)联盟成员对社区参与的认识,(b)团结和联盟的建立,以及(c)长期参与的启动,以便进行有意义的研究转化。我们逐步推进的过程包括战略规划;积累动力;将参与制度化到联盟基础设施中;以及制定、实施和评估一项计划。我们从非正式的一次性社区互动转向系统的、正规化的、能力建设的相互参与。我们分享我们遇到的阻碍和解决方法,这些为我们向其他大型研究联盟提出建议提供了参考——包括投入时间来建立社区参与能力,承认并利用相关社区的优势,确保有一个强大的社区参与问责基础设施,并将工作建立在反种族主义原则之上。