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跨学科项目中阿尔茨海默病患者照料者对身心健康的感知益处:一项定性研究

Benefits Perceived by Caregivers of Patients with Alzheimer's Disease on Physical and Emotional Health in an Interdisciplinary Program: A Qualitative Study.

作者信息

Urbano-Mairena Javier, De Los Ríos-Calonge Javier, Postigo-Mota Salvador, Carvajal-Gil Julián, Silveira-Saraiva Elisa Sofía, Guerra-Bustamante Joan, Muñoz-Bermejo Laura

机构信息

Social Impact and Innovation in Health (InHEALTH) Research Group, University Centre of Mérida, University of Extremadura, 06800 Mérida, Spain.

Department of Sport Sciences, Sports Research Centre, Miguel Hernández University of Elche, 03202 Elche, Spain.

出版信息

Healthcare (Basel). 2024 Jul 16;12(14):1414. doi: 10.3390/healthcare12141414.

DOI:10.3390/healthcare12141414
PMID:39057557
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11275445/
Abstract

Alzheimer's disease is the most common type of dementia, severely affecting the families and caregivers who live with those affected. The aim was to explore the physical, psychological, and behavioral benefits for caregivers of people with Alzheimer's disease. Fifteen semi-structured interviews were conducted with informal Alzheimer's caregivers upon completion of the program. Following a discussion on the topics, categories, and codes among the researchers, a consensus was reached to obtain the final themes and categories. Three main categories were obtained: (1) perceived benefits by the participants; (2) applicability of the knowledge; and (3) proposals for improvement. Participants expressed having perceived improvements in their ability to manage emotions and cope with the situation created by the disease, physical capacity, and in their relationships. In this sense, the application of the contents addressed during the intervention became a fundamental tool for the participants' daily lives. This study showed how an interdisciplinary intervention with psychological sessions, health education, and physical activities could be beneficial for improving both the physical and mental health of caregivers.

摘要

阿尔茨海默病是最常见的痴呆类型,严重影响着与患者共同生活的家庭和照料者。其目的是探索对阿尔茨海默病患者照料者的身体、心理和行为方面的益处。在项目结束后,对15名阿尔茨海默病非正式照料者进行了半结构化访谈。在研究人员对主题、类别和编码进行讨论后,达成了共识以获得最终的主题和类别。得到了三个主要类别:(1)参与者感知到的益处;(2)知识的适用性;(3)改进建议。参与者表示在管理情绪的能力、应对疾病造成的状况、身体能力以及人际关系方面都有了感知到的改善。从这个意义上说,干预期间所涉及内容的应用成为了参与者日常生活的一个基本工具。这项研究表明,结合心理辅导、健康教育和体育活动的跨学科干预如何能够有益于改善照料者的身心健康。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96b2/11275445/71f3c01b975a/healthcare-12-01414-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96b2/11275445/5651e6db1fdb/healthcare-12-01414-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96b2/11275445/b7fbdb97838e/healthcare-12-01414-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96b2/11275445/71f3c01b975a/healthcare-12-01414-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96b2/11275445/5651e6db1fdb/healthcare-12-01414-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96b2/11275445/b7fbdb97838e/healthcare-12-01414-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96b2/11275445/71f3c01b975a/healthcare-12-01414-g003.jpg

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本文引用的文献

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2023 Alzheimer's disease facts and figures.2023 年阿尔茨海默病事实和数据。
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Predicting personal self-care in informal caregivers.预测非正式照料者的个人自我护理情况。
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Exercise Training for Persons with Alzheimer's Disease and Caregivers: A Review of Dyadic Exercise Interventions.针对阿尔茨海默病患者及其照料者的运动训练:二元运动干预综述
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Impact of caring for persons with Alzheimer's disease or dementia on caregivers' health outcomes: findings from a community based survey in Japan.照顾阿尔茨海默病或痴呆症患者对照顾者健康状况的影响:来自日本一项社区调查的结果
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