Bajraktari Gani, Elezi Shpend, Bytyci Ibadete, Ibrahimi Pranvera, Abdyli Genc, Pllana-Pruthi Edita, Karahoda Rona, Batalli Arlind, Poniku Afrim, Shatri Mentor, Gashi Drilon, Bajraktari Artan, Shatri Faik, Henein Michael Y
Clinic of Cardiology, University Clinical Centre of Kosova, 10000 Prishtina, Kosovo.
Medical Faculty, University of Prishtina, 10000 Prishtina, Kosovo.
Diagnostics (Basel). 2024 Jul 11;14(14):1486. doi: 10.3390/diagnostics14141486.
The KOSovan Acute Coronary Syndrome (KOS-ACS) Registry is established as a prospective, continuous, nationwide, web-based registry that is operated online. The KOS-ACS registry is designed with the following objectives: (1) to obtain data on the demographic, clinical, and laboratory characteristics of ACS patients treated in Kosovo; (2) to create a national database with information on health care in ACS patients treated in Kosovo; (3) to identify the national features of associations between ACS characteristics and clinical outcomes, including mortality, complications, the length of hospital stay, and the quality of clinical care; and (4) to propose a practical guide for improving the quality and efficiency of ACS treatment in Kosovo. The Kosovo Society of Cardiology and University of Prishtina will be responsible for the development of the KOS-ACS registry and centralized data analysis at the national level. The KOS-ACS Registry will enroll all patients admitted, at any of the registered clinical centers, with the diagnosis of ACS and who will be clinically managed at any of the Kosovo hospitals. Data on patient demographics, clinical characteristics, previous and hospital drug treatment, and reperfusion therapy will be collected. The type of ACS (unstable angina, NSTEMI, or STEMI) will also be clearly defined. The time from first medical contact to balloon inflation (FMC-to-balloon) and door-to-ballon time will be registered. In-hospital death and complications will be registered. Data on the post-hospital primary outcome (MACE: cardiac death, all-cause mortality, hospitalization, stroke, need for coronary revascularization) of patients, at 30 days and 1 year, will be included in the registry.
科索沃急性冠状动脉综合征（KOS-ACS）注册登记是一个前瞻性、连续性、全国性的基于网络的在线注册登记系统。KOS-ACS注册登记系统的设计目标如下：（1）获取在科索沃接受治疗的急性冠状动脉综合征患者的人口统计学、临床和实验室特征数据；（2）创建一个包含在科索沃接受治疗的急性冠状动脉综合征患者医疗保健信息的国家数据库；（3）确定急性冠状动脉综合征特征与临床结局（包括死亡率、并发症、住院时间和临床护理质量）之间关联的国家特征；（4）提出一份提高科索沃急性冠状动脉综合征治疗质量和效率的实用指南。科索沃心脏病学会和普里什蒂纳大学将负责KOS-ACS注册登记系统的开发以及国家层面的集中数据分析。KOS-ACS注册登记系统将纳入所有在任何注册临床中心入院且诊断为急性冠状动脉综合征并将在科索沃任何医院接受临床管理的患者。将收集患者的人口统计学数据、临床特征、既往和住院期间的药物治疗以及再灌注治疗数据。急性冠状动脉综合征的类型（不稳定型心绞痛、非ST段抬高型心肌梗死或ST段抬高型心肌梗死）也将明确界定。将记录从首次医疗接触到球囊扩张（FMC-to-balloon）的时间以及门球时间。将记录住院死亡和并发症情况。患者在30天和1年时的院后主要结局（MACE：心源性死亡、全因死亡率、住院、中风、冠状动脉血运重建需求）数据将纳入注册登记系统。
