Benini Franca, Brogelli Laura, Mercante Anna, Giacomelli Luca
Pediatric Palliative Care, Pain Service, Department of Women's and Children's Health, University of Padua, 35122 Padua, Italy.
Polistudium Srl, 20121 Milan, Italy.
Children (Basel). 2024 Jul 16;11(7):860. doi: 10.3390/children11070860.
Pediatric palliative care (PPC) is defined as "the active care of the child's body, quality of life, mind and spirit, also giving support to the family". PPC should be established once a diagnosis of life-limiting or life-threatening disease is reached and should continue as long as necessary. Therefore, pediatric palliative care (PPC) can continue for years, also given the improved care approaches for children with life-limiting or life-threatening diseases. Over time, the child may grow to become a young adult, and when this happens, the transition to adult healthcare services must be undertaken. This article discusses possible interventions, fostering an efficient transition from pediatric to adult palliative care. A narrative review presents issues, experiences, and existing programs. A "Perspectives" section presents opinions and proposals by the authors. The transition process is not limited to a change from pediatric to adult services. Rather, it includes the entire process of the development of the child and requires interdisciplinary management with proper planning and collaboration among professionals of pediatric and adult teams.
儿童姑息治疗（PPC）的定义是“对儿童的身体、生活质量、心理和精神进行积极护理，并为家庭提供支持”。一旦确诊为危及生命或有生命危险的疾病，就应建立儿童姑息治疗，并且只要有需要就应持续进行。因此，鉴于对患有危及生命或有生命危险疾病儿童的护理方法有所改进，儿童姑息治疗可以持续数年。随着时间的推移，儿童可能成长为青少年，当这种情况发生时，就必须向成人医疗服务过渡。本文讨论了可能的干预措施，以促进从儿童姑息治疗到成人姑息治疗的有效过渡。一篇叙述性综述介绍了相关问题、经验和现有项目。“观点”部分展示了作者的意见和建议。过渡过程并不局限于从儿童服务向成人服务的转变。相反，它涵盖了儿童成长的整个过程，需要跨学科管理，并要求儿科和成人团队的专业人员进行适当规划与协作。
