Singh Preeti, Seth Anju
Department of Pediatrics, Lady Hardinge Medical College, New Delhi, India.
Indian J Pediatr. 2023 Nov;90(11):1134-1141. doi: 10.1007/s12098-023-04780-w. Epub 2023 Aug 5.
Childhood onset endocrine disorders need long-term medical, psychological and social management. Over time, many illnesses evolve, while others may witness onset of new complications. Thus, the components of the care change as the child grows into adolescence and then adulthood. The transition of children and adolescents with chronic endocrine disorders to adult care continues to be a major challenge. Pediatric and adult healthcare teams should together design a transitional care plan that is developmentally appropriate and responsive to the needs of young adults. The preparation for transition to adult care should begin early in adolescence and involve both the adolescent and his parents. A structured and planned transitional care bridges the gap between pediatric and adult care teams, promote ongoing engagement and build trust with the new healthcare teams. Combined pediatric-adult care transition model for endocrine conditions has yielded high adherence rates and patient satisfaction.
儿童期发病的内分泌疾病需要长期的医学、心理和社会管理。随着时间的推移,许多疾病会演变,而其他疾病可能会出现新的并发症。因此,随着孩子成长为青少年,然后步入成年,护理的组成部分也会发生变化。患有慢性内分泌疾病的儿童和青少年向成人护理的过渡仍然是一个重大挑战。儿科和成人医疗团队应共同设计一个适合其发育阶段且能满足年轻人需求的过渡护理计划。向成人护理过渡的准备工作应在青春期早期开始,并让青少年及其父母都参与进来。一个结构化且有计划的过渡护理可以弥合儿科和成人护理团队之间的差距,促进持续参与并与新的医疗团队建立信任。内分泌疾病的儿科 - 成人联合护理过渡模式已取得了较高的依从率和患者满意度。