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家庭-专业人员合作对脑瘫儿童功能目标达成及照顾者生活质量与负担的有效性:一项随机对照研究

Effectiveness of Family-Professional Collaboration on Functional Goals Achievement of Children with Cerebral Palsy and Caregivers' Quality of Life and Burden: A Randomized Comparative Study.

作者信息

Al-Otaibi Sarah L, Algabbani Maha F, Alboraih Azza M, AlAbdulwahab Sami S

机构信息

Department of Health Rehabilitation Sciences, College of Applied Medical Sciences, King Saud University, Riyadh 11433, Saudi Arabia.

Research and Scientific Center, Sultan Bin Abdulaziz Humanitarian City, Riyadh 13571, Saudi Arabia.

出版信息

J Clin Med. 2024 Jul 11;13(14):4057. doi: 10.3390/jcm13144057.

DOI:10.3390/jcm13144057
PMID:39064097
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11277485/
Abstract

: Family-professional collaboration is important to enhance the outcomes for children with cerebral palsy and their caregivers. : This study examined the effect of implementing a family-professional collaboration practice model on children with cerebral palsy and their caregivers. : A randomized, single-blind comparative study included 28 physical therapists, 44 children with cerebral palsy between the ages of 2 and 12 years old, and their caregivers. Physical therapists in the experimental group received training in how to implement collaboration in their therapy sessions over the course of two sessions (3 h each). The children's achievement goal-range rate was measured using the Goal Attainment Scaling, the caregivers' quality of life was assessed using the World Health Organization Quality of Life-Brief, and the caregiver burden was evaluated using the Zarit Burden Interview. : All children showed improvement on the Goal Attainment Scaling change rate ( = 0.002), with no significant differences between groups ( < 0.44). However, a group × time interaction was observed. The Children Goal Attainment Scaling rate decreased between the two assessment sessions for children in the control group, while the Goal Attainment Scaling change rate was steady for the experimental group. There were no main effects of time and group or interaction of time × group reported on World Health Organization Quality of Life-Brief domains and no main effect of time on the Zarit Burden Interview, but there was a main effect between groups ( = 0.03), with partial eta square = 0.11 in favor of the experimental group. : The family-professional collaboration practice model could be a potential practice to positively improve the outcomes in children with cerebral palsy and their caregivers.

摘要

家庭与专业人员的合作对于改善脑瘫儿童及其照顾者的治疗效果非常重要。本研究探讨了实施家庭与专业人员合作实践模式对脑瘫儿童及其照顾者的影响。一项随机、单盲对照研究纳入了28名物理治疗师、44名年龄在2至12岁之间的脑瘫儿童及其照顾者。实验组的物理治疗师在两个疗程(每个疗程3小时)中接受了关于如何在治疗过程中实施合作的培训。使用目标达成量表测量儿童的成就目标达成率,使用世界卫生组织生活质量简表评估照顾者的生活质量,使用扎里特负担访谈评估照顾者的负担。所有儿童在目标达成量表变化率上均有改善(P = 0.002),组间无显著差异(P < 0.44)。然而,观察到了组×时间的交互作用。对照组儿童在两次评估之间的目标达成量表率下降,而实验组的目标达成量表变化率保持稳定。在世界卫生组织生活质量简表各领域中,未报告时间和组的主效应或时间×组的交互作用,在扎里特负担访谈中未报告时间的主效应,但组间存在主效应(P = 0.03),偏η² = 0.11,支持实验组。家庭与专业人员合作实践模式可能是一种积极改善脑瘫儿童及其照顾者治疗效果的潜在实践。

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本文引用的文献

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