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改善慢性肾病儿科患者的护理过渡:一个试点项目。

Improving Transition of Care for Pediatric Patients With Chronic Kidney Disease: A Pilot Project.

作者信息

Chan Melvin, Young Sarah, Hanna Melisha

机构信息

Pediatric Nephrology, Children's Hospital Colorado, Aurora, USA.

Nephrology, University of Colorado Anschutz Medical Campus, Aurora, USA.

出版信息

Cureus. 2024 Jun 28;16(6):e63367. doi: 10.7759/cureus.63367. eCollection 2024 Jun.

DOI:10.7759/cureus.63367
PMID:39077263
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11283919/
Abstract

Introduction Transition is the process of preparing an adolescent or young adult for the adult model of care. Poor transitions have been linked to increased medical utilization and poorer kidney outcomes. There are limited studies evaluating predictors of transition readiness or interventions in pediatric patients with chronic kidney disease (CKD). Methods We enrolled 42 non-dialysis, non-transplant patients with CKD stage 2 or higher and 14 years and older receiving care in our pediatric nephrology clinic. Data collected included demographics, clinical information, and transition readiness as measured by the Transition Readiness Assessment Questionnaire (TRAQ). Patients were provided with a structured, remote curriculum with resources that addressed areas of need. Patients were followed every three to six months. Repeat TRAQ questionnaires were administered six months after enrollment. Results Our study found that younger age and male gender were risk factors for poor transition. Age was consistently a positive predictor of higher TRAQ scores in the medication, appointment, and total score domains (p < 0.05). Male gender was a risk factor for lower TRAQ scores in the appointment and communication domains (p < 0.05). Additionally, our curriculum was effective at improving scores across all TRAQ domains, with an average increase of about 25% in six months. There was no difference in patients who had a three-month follow-up as compared to a six-month follow-up (p > 0.05). Conclusion Our study finds that younger age and male gender are risk factors for poor transition. Additionally, a structured, remote curriculum is effective at improving transition readiness.

摘要

引言

过渡是指帮助青少年或青年成年人做好准备,以适应成人护理模式的过程。过渡不佳与医疗利用率增加和肾脏预后较差有关。评估慢性肾脏病(CKD)儿科患者过渡准备情况的预测因素或干预措施的研究有限。

方法

我们纳入了42例2期或更高分期的非透析、非移植CKD患者,年龄在14岁及以上,在我们的儿科肾脏病诊所接受治疗。收集的数据包括人口统计学、临床信息以及通过过渡准备评估问卷(TRAQ)测量的过渡准备情况。为患者提供了一个结构化的远程课程,其中包含满足需求领域的资源。每三到六个月对患者进行随访。在入组六个月后再次发放TRAQ问卷。

结果

我们的研究发现,年龄较小和男性是过渡不佳的危险因素。在药物、预约和总分领域,年龄始终是TRAQ得分较高的积极预测因素(p < 0.05)。男性是预约和沟通领域TRAQ得分较低的危险因素(p < 0.05))。此外,我们的课程在提高所有TRAQ领域的得分方面是有效的,六个月内平均提高约25%。三个月随访患者与六个月随访患者之间没有差异(p > 0.05)。

结论

我们的研究发现,年龄较小和男性是过渡不佳的危险因素。此外,结构化的远程课程在提高过渡准备情况方面是有效的。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5753/11283919/0eb6a892eefb/cureus-0016-00000063367-i06.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5753/11283919/e1dd6707dd16/cureus-0016-00000063367-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5753/11283919/5f7234f90634/cureus-0016-00000063367-i02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5753/11283919/3a362c5eb6b6/cureus-0016-00000063367-i03.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5753/11283919/0661aa74b6e1/cureus-0016-00000063367-i04.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5753/11283919/2b064d553a4f/cureus-0016-00000063367-i05.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5753/11283919/0eb6a892eefb/cureus-0016-00000063367-i06.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5753/11283919/e1dd6707dd16/cureus-0016-00000063367-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5753/11283919/5f7234f90634/cureus-0016-00000063367-i02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5753/11283919/3a362c5eb6b6/cureus-0016-00000063367-i03.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5753/11283919/0661aa74b6e1/cureus-0016-00000063367-i04.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5753/11283919/2b064d553a4f/cureus-0016-00000063367-i05.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5753/11283919/0eb6a892eefb/cureus-0016-00000063367-i06.jpg

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本文引用的文献

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Cureus. 2023 Oct 11;15(10):e46825. doi: 10.7759/cureus.46825. eCollection 2023 Oct.
2
Combining human and AI could predict nephrologies future, but should be handled with care.将人类与人工智能相结合可以预测肾脏病学的未来,但需谨慎对待。
Acta Paediatr. 2023 Sep;112(9):1844-1848. doi: 10.1111/apa.16867. Epub 2023 Jun 12.
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KDIGO 2022 Clinical Practice Guideline for Diabetes Management in Chronic Kidney Disease.
KDIGO 2022慢性肾脏病糖尿病管理临床实践指南
Kidney Int. 2022 Nov;102(5S):S1-S127. doi: 10.1016/j.kint.2022.06.008.
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Multidisciplinarity in Transition Pathways for Patients With Kidney Disease: The Current State of Play.肾病患者过渡途径中的多学科性:现状
Front Pediatr. 2021 Sep 20;9:689758. doi: 10.3389/fped.2021.689758. eCollection 2021.
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Transfer of Care for People with Severe Forms of Thalassemia: Learning from Past Experiences to Create a Transition Plan.地中海贫血严重患者的交接护理:从过往经验中学习,制定交接计划。
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Prioritizing a Research Agenda of Transitional Care Interventions for Childhood-Onset Disabilities.为儿童期残疾制定过渡性护理干预研究议程的优先次序。
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Transitional Care Interventions for Youth With Disabilities: A Systematic Review.过渡期护理干预对残疾青年的影响:系统评价。
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