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肾病患者过渡途径中的多学科性:现状

Multidisciplinarity in Transition Pathways for Patients With Kidney Disease: The Current State of Play.

作者信息

Scarponi Dorella, Cammaroto Viviana, Pasini Andrea, La Scola Claudio, Mencarelli Francesca, Bertulli Cristina, Busutti Marco, La Manna Gaetano, Pession Andrea

机构信息

Nephrology and Dialysis Unit, Department of Pediatrics, IRCCS Azienda Ospedaliero-Universitaria of Bologna, Bologna, Italy.

Nephrology, Dialysis and Transplantation Unit, Department of Experimental, Diagnostic and Specialty Medicine, IRCCS Azienda Ospedaliero-Universitaria of Bologna, Bologna, Italy.

出版信息

Front Pediatr. 2021 Sep 20;9:689758. doi: 10.3389/fped.2021.689758. eCollection 2021.

Abstract

In the field of medical care, successful transition from pediatric-centered to adult-oriented healthcare can provide a sense of continuity in the development of youth, and prepare them to accept responsibility for and manage their own chronic kidney condition in complete autonomy. The so-called transition process requires the presence of some basic aspects: a multidisciplinary team, which acts as a bridge between child and adult services; a comprehensive clinical, cognitive, psychological, and social change for the young people; the involvement of family and caregivers. Within the framework of transition and chronicity during the developmental age, we selected international papers explaining models which agreed on some important steps in the transition process, although many differences can be observed between different countries. In fact, in Europe, the situation appears to be heterogeneous as regards certain aspects: the written transition plan, the educational programmes, the timing of transfer to adult services, the presence of a transition coordinator, a dedicated off-site transition clinic. We then analyzed some studies focusing on patients with renal diseases, including the first to contain a standardized protocol for transition which was launched recently in the USA, and which seems to have already achieved important positive, although limited, results. In Italy, the issue of transition is still in its infancy, however important efforts in the management of chronic kidney disease have already been initiated in some regions, including Emila Romagna, which gives us hope for the future of many young people.

摘要

在医疗保健领域,从以儿科为中心的医疗成功过渡到以成人为导向的医疗保健,可以为青少年的成长提供一种连续性,并使他们做好准备,能够完全自主地对自己的慢性肾病负责并进行管理。所谓的过渡过程需要具备一些基本要素:一个多学科团队,它充当儿童和成人服务之间的桥梁;青少年在临床、认知、心理和社会方面的全面转变;家庭和照顾者的参与。在发育年龄阶段的过渡和慢性病框架内,我们挑选了一些国际文献,这些文献阐述了一些在过渡过程中达成共识的重要步骤的模式,尽管不同国家之间存在许多差异。事实上,在欧洲,某些方面的情况似乎参差不齐:书面过渡计划、教育项目、转至成人服务的时间、过渡协调员的配备、专门的非现场过渡诊所。然后,我们分析了一些针对肾病患者的研究,其中包括美国最近推出的首个包含标准化过渡方案的研究,该方案似乎已经取得了重要的积极成果,尽管成果有限。在意大利,过渡问题仍处于起步阶段,不过,包括艾米利亚 - 罗马涅在内的一些地区已经在慢性肾病管理方面展开了重要工作,这让我们对许多年轻人的未来充满希望。

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