• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利：CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法，用中文像聊天一样搜索，搜遍4000万医学文献。AI智能推荐，让科研检索更轻松。

立即免费搜索

文件翻译

保留排版，准确专业，支持PDF/Word/PPT等文件格式，支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述，25分钟生成高质量综述，智能提取关键信息，辅助科研写作。

立即免费体验

IVA型黏多糖贮积症患者的疼痛管理挑战

Pain management challenges in a patient with mucopolysaccharidosis IVA.

作者信息

Gurgius Marcus, Donoghue Sarah, Wallace Robyn A

机构信息

College of Health and Medicine University of Tasmania Hobart Tasmania Australia.

Tasmanian Pain Clinic St Helen's Private Hospital Consulting Suites Hobart Tasmania Australia.

出版信息

Clin Case Rep. 2024 Jul 28;12(8):e9214. doi: 10.1002/ccr3.9214. eCollection 2024 Aug.

DOI:10.1002/ccr3.9214
PMID:39077724
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11284257/
Abstract

It is important to consider all potential pain management modalities including alternative treatment on managing complex pain presentations. Acupuncture is a treatment modality that may result in reduction of pain in patients with significant medical comorbidities due to MPS IVA.

摘要

考虑所有潜在的疼痛管理方式，包括用于处理复杂疼痛症状的替代疗法，这一点很重要。针灸是一种治疗方式，对于因IVA型粘多糖贮积症（MPS IVA）而患有严重合并症的患者，针灸可能会减轻其疼痛。

相似文献

1
Pain management challenges in a patient with mucopolysaccharidosis IVA.IVA型黏多糖贮积症患者的疼痛管理挑战
Clin Case Rep. 2024 Jul 28;12(8):e9214. doi: 10.1002/ccr3.9214. eCollection 2024 Aug.
2
Recommendations for the management of MPS IVA: systematic evidence- and consensus-based guidance.MPS IVA 管理建议：基于系统证据和共识的指南。
Orphanet J Rare Dis. 2019 Jun 13;14(1):137. doi: 10.1186/s13023-019-1074-9.
3
Integrated Management of an Adult Patient with Mucopolysaccharidosis type IVA: A Case Report with a Six-Year Follow-up.成年IVA型黏多糖贮积症患者的综合管理：一项为期六年随访的病例报告
Eur J Case Rep Intern Med. 2023 Dec 13;11(1):004113. doi: 10.12890/2023_004113. eCollection 2024.
4
Mucopolysaccharidosis IVA: Diagnosis, Treatment, and Management.黏多糖贮积症 IVA：诊断、治疗与管理。
Int J Mol Sci. 2020 Feb 23;21(4):1517. doi: 10.3390/ijms21041517.
5
Inflammatory process and oxidative/nitrative stress: in vivo study in mucopolysaccharidosis type IV A patients under long-term enzyme replacement therapy.炎症过程与氧化/硝化应激：长期酶替代疗法治疗IV A型黏多糖贮积症患者的体内研究
Arch Biochem Biophys. 2023 Mar 15;737:109541. doi: 10.1016/j.abb.2023.109541. Epub 2023 Feb 6.
6
Review of clinical presentation and diagnosis of mucopolysaccharidosis IVA.IVA 型黏多糖贮积症的临床特征和诊断回顾。
Mol Genet Metab. 2013 Sep-Oct;110(1-2):54-64. doi: 10.1016/j.ymgme.2013.04.002. Epub 2013 Apr 10.
7
Adjunct diagnostic value of radiological findings in mucopolysaccharidosis type IVa-related thoracic spinal abnormalities: a pilot study.影像学表现对 IVA 型黏多糖贮积症相关胸段脊柱异常的辅助诊断价值：一项初步研究。
Orphanet J Rare Dis. 2022 Jul 29;17(1):296. doi: 10.1186/s13023-022-02449-9.
8
Glycosaminoglycans analysis in blood and urine of patients with mucopolysaccharidosis.糖胺聚糖分析在黏多糖贮积症患者的血液和尿液。
Mol Genet Metab. 2018 Sep;125(1-2):44-52. doi: 10.1016/j.ymgme.2018.04.011. Epub 2018 May 17.
9
Clinical characteristics and effects of enzyme replacement therapy with elosulfase alfa in Korean patients with mucopolysaccharidosis type IVA.α-艾杜糖醛酸-2-硫酸酯酶替代疗法对韩国IVA型黏多糖贮积症患者的临床特征及疗效
Mol Genet Metab Rep. 2022 Apr 15;31:100869. doi: 10.1016/j.ymgmr.2022.100869. eCollection 2022 Jun.
10
Addressing the need for patient-friendly medical communications: adaptation of the 2019 recommendations for the management of MPS VI and MPS IVA.满足患者友好型医学沟通的需求：对 2019 年 MPS VI 和 MPS IVA 管理建议的改编。
Orphanet J Rare Dis. 2022 Mar 2;17(1):91. doi: 10.1186/s13023-022-02219-7.

本文引用的文献

1
Understandings of acupuncture application and mechanisms.对针灸应用及作用机制的认识。
Am J Transl Res. 2022 Mar 15;14(3):1469-1481. eCollection 2022.
2
Non-cardiac Manifestations in Adult Patients With Mucopolysaccharidosis.成人黏多糖贮积症患者的非心脏表现
Front Cardiovasc Med. 2022 Mar 7;9:839391. doi: 10.3389/fcvm.2022.839391. eCollection 2022.
3
Bone Biomarkers in Mucopolysaccharidoses.黏多糖贮积症中的骨生物标志物
Int J Mol Sci. 2021 Nov 23;22(23):12651. doi: 10.3390/ijms222312651.
4
Activity of daily living in mucopolysaccharidosis IVA patients: Evaluation of therapeutic efficacy.黏多糖贮积症 IVA 患者的日常生活活动能力：疗效评估。
Mol Genet Genomic Med. 2021 Nov;9(11):e1806. doi: 10.1002/mgg3.1806. Epub 2021 Oct 8.
5
Mucopolysaccharidosis IVA: Diagnosis, Treatment, and Management.黏多糖贮积症 IVA：诊断、治疗与管理。
Int J Mol Sci. 2020 Feb 23;21(4):1517. doi: 10.3390/ijms21041517.
6
Use of complementary and alternative medicine in patients with inborn errors of metabolism: A single-center study.先天性代谢缺陷患者补充和替代医学的应用：一项单中心研究。
JIMD Rep. 2019 Dec 18;51(1):105-112. doi: 10.1002/jmd2.12089. eCollection 2020 Jan.
7
Laser Acupuncture: A Concise Review.激光针灸：简要综述
Med Acupunct. 2019 Jun 1;31(3):164-168. doi: 10.1089/acu.2019.1343. Epub 2019 Jun 17.
8
Pain in Mucopolysaccharidoses: Analysis of the Problem and Possible Treatments.黏多糖贮积症的疼痛：问题分析及可能的治疗方法。
Int J Mol Sci. 2018 Oct 8;19(10):3063. doi: 10.3390/ijms19103063.
9
Acupuncture for Chronic Pain: Update of an Individual Patient Data Meta-Analysis.针刺治疗慢性疼痛：一项个体患者数据荟萃分析的更新。
J Pain. 2018 May;19(5):455-474. doi: 10.1016/j.jpain.2017.11.005. Epub 2017 Dec 2.
10
The effect of galsulfase enzyme replacement therapy on the growth of patients with mucopolysaccharidosis VI (Maroteaux-Lamy syndrome).瓜尔硫酸酯酶替代治疗对黏多糖贮积症 VI 型（马罗托劳里综合征）患者生长的影响。
Mol Genet Metab. 2017 Sep;122(1-2):107-112. doi: 10.1016/j.ymgme.2017.03.008. Epub 2017 Mar 31.