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青少年 1 型糖尿病患者的患病体验:定性元分析。

The Illness Experiences of Adolescents with Type 1 Diabetes Mellitus: A Qualitative Meta-synthesis.

机构信息

School of Nursing, Hangzhou Normal University, Zhejiang Province, China.

School of Nursing, Hangzhou Normal University, Zhejiang Province, China.

出版信息

Asian Nurs Res (Korean Soc Nurs Sci). 2024 Aug;18(3):313-321. doi: 10.1016/j.anr.2024.07.004. Epub 2024 Jul 30.

Abstract

This study aims to systematically review the illness experience of adolescent patients with type 1 diabetes mellitus (T1DM). The JBI qualitative systematic review method was used and meta-aggregate analysis of 14 qualitative studies was performed. Qualitative studies on the disease experience of adolescent patients with T1DM were obtained from Cochrane, PubMed, Web of Science, CINAHL, Embase, Wanfang, CNKI, and VIP, and the search period was from 1995 to 2024. The qualitative research quality evaluation tool of JBI the Evidence-based Health Care Center in Australia was used to evaluate the analysis results. Thirty-one results were distilled and categorized into 7 themes and then synthesized into 3 overarching findings: (1) experiencing psychological distress and developing coping mechanisms following adjustment; (2) acknowledging self-management shortcomings and actively seeking support; and (3) overcoming challenges and growing through experiences. The findings illuminate that adolescents with T1DM often experience negative physical and emotional challenges during their illness. Transitioning from dependency to independence poses numerous obstacles that can be overcome by improving both internal and external support, cultivating self-management skills, strengthening coping mechanisms, and achieving control over the disease while fostering personal growth.

摘要

本研究旨在系统回顾青少年 1 型糖尿病患者的患病体验。采用 JBI 定性系统评价方法,对 14 项定性研究进行了荟萃综合分析。从 Cochrane、PubMed、Web of Science、CINAHL、Embase、万方、CNKI 和 VIP 数据库中获取关于青少年 1 型糖尿病患者疾病体验的定性研究,检索时间为 1995 年至 2024 年。采用澳大利亚循证卫生保健中心 JBI 定性研究质量评价工具对分析结果进行评价。提取 31 个结果并进行分类,归入 7 个主题,然后综合为 3 个总体发现:(1)经历心理困扰并在调整后发展应对机制;(2)认识到自我管理的不足并积极寻求支持;(3)克服挑战并通过经验成长。研究结果表明,青少年 1 型糖尿病患者在患病期间经常经历身体和情绪方面的负面挑战。从依赖到独立的转变面临许多障碍,通过改善内部和外部支持、培养自我管理技能、加强应对机制以及在控制疾病的同时促进个人成长,可以克服这些障碍。

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