Bulathwatta Darshika Thejani, Rudnik Agata, Bidzan Mariola
Department of Psychology and Counseling, Faculty of Health Sciences, The Open University of Sri Lanka, Colombo, Sri Lanka.
Institute of Psychology, Faculty of Social Sciences, University of Gdańsk, Gdansk, Poland.
Health Expect. 2024 Aug;27(4):e14157. doi: 10.1111/hex.14157.
This study aims to explore the experiences of individuals with chronic kidney disease (CKD) undergoing haemodialysis and their caregivers, focusing on the disease's impact and the treatment process.
In Sri Lanka, CKD is a growing health concern, particularly affecting farming communities and contributing to the strain on the biomedical healthcare system. Despite increasing awareness of CKD's physical implications, its psychosocial impact remains underexplored. This study seeks to fill this gap, aiming to inform culturally sensitive interventions and improve the healthcare system's responsiveness to the unique needs of Sinhala Buddhist individuals with CKD and their caregivers.
An exploratory qualitative study.
Semistructured interviews were conducted with 10 individuals undergoing haemodialysis and 5 caregivers at a dialysis unit. The interviews were audio-recorded, transcribed and analysed using conventional qualitative content analysis.
The analysis revealed three interrelated main themes: (1) impact on standard of living (quality of life), (2) coping strategies and (3) medical experience, with a notable influence of traditional beliefs and practices.
The findings highlight the need for a holistic approach to CKD management that integrates physical, emotional, psychological and social aspects, considering the significant role of traditional influences. Further research is essential to develop effective interventions that can enhance the quality of life for CKD.
The lived experiences of Sinhala Buddhist individuals with CKD and their caregivers served as a cornerstone, providing profound insights into the impact of the condition on their lives. Throughout the study, these participants played an instrumental role in refining the research's cultural sensitivity and relevance. Their engagement extended beyond the data collection phase to encompass feedback sessions, where they actively shared their perspectives. This ongoing collaboration ensured the study's depth and applicability to real-world experiences. By actively involving those directly affected by CKD, this collaborative approach safeguards that the study remains rooted in their voices and addresses their unique needs.
This study adhered to relevant EQUATOR guidelines (the COREQ checklist).
This study is not a clinical trial, and thus, registration is not applicable.
本研究旨在探讨接受血液透析的慢性肾脏病（CKD）患者及其照顾者的经历，重点关注疾病的影响和治疗过程。
在斯里兰卡，慢性肾脏病日益引起人们对健康的关注，尤其影响农业社区，并给生物医学医疗系统带来压力。尽管人们对慢性肾脏病的身体影响的认识不断提高，但其社会心理影响仍未得到充分探索。本研究旨在填补这一空白，旨在为具有文化敏感性的干预措施提供信息，并提高医疗系统对患有慢性肾脏病的僧伽罗佛教徒及其照顾者独特需求的响应能力。
一项探索性定性研究。
在一个透析单元对10名接受血液透析的患者和5名照顾者进行了半结构化访谈。访谈进行了录音、转录，并采用传统的定性内容分析法进行分析。
分析揭示了三个相互关联的主要主题：（1）对生活水平（生活质量）的影响，（2）应对策略，（3）医疗体验，传统信仰和习俗有显著影响。
研究结果强调了对慢性肾脏病管理采取整体方法的必要性，该方法应整合身体、情感、心理和社会方面，同时考虑传统影响的重要作用。进一步的研究对于开发能够提高慢性肾脏病患者生活质量的有效干预措施至关重要。
患有慢性肾脏病的僧伽罗佛教徒及其照顾者的生活经历是基石，为该疾病对他们生活的影响提供了深刻见解。在整个研究过程中，这些参与者在提高研究的文化敏感性和相关性方面发挥了重要作用。他们的参与不仅限于数据收集阶段，还包括反馈会议，在会议上他们积极分享自己的观点。这种持续的合作确保了研究的深度和对现实世界经历的适用性。通过积极让受慢性肾脏病直接影响的人参与，这种合作方法确保研究始终以他们的声音为基础，并满足他们的独特需求。
本研究遵循了相关的赤道准则（COREQ清单）。
本研究不是临床试验，因此无需注册。
