Kateb Alexia, McCarthy Kaleigh, Farragher Janine
Department of Occupational Science and Occupational Therapy, University of Toronto, ON, Canada.
Can J Kidney Health Dis. 2024 Jul 30;11:20543581241263168. doi: 10.1177/20543581241263168. eCollection 2024.
Living with kidney failure can interfere with life participation (ie, participation in valued life activities). Life participation has recently been identified as a top-priority health outcome of people on peritoneal dialysis therapy, but it is a relatively unexplored topic in peritoneal dialysis.
The objective is to describe the interventions that have been used to promote life participation in the peritoneal dialysis population and highlight research gaps warranting further investigation.
A scoping review was conducted according to the Joanna Briggs Institute methodology.
Six electronic databases (MEDLINE [OVID], EMBASE, PsycINFO, Cochrane Central Register of Controlled Trials, CINAHL Plus, SCOPUS) were searched.
Adults aged 18+ years on peritoneal dialysis therapy.
Any dedicated scale or subscale that measured life participation as an isolated outcome.
Title/abstract screening was completed independently after adequate inter-rater reliability (kappa > 0.8) was achieved among reviewers. Full-text review and data extraction were conducted in duplicate. Extracted data were analyzed using counts, percentages, and narrative synthesis to describe patterns in the literature.
After identifying 13 874 results, 17 studies met eligibility criteria. Eight studies were conducted within the past 5 years, with China as the most common study location. Only 2 studies investigated life participation as a primary study outcome. Eight studies targeted personal-physical barriers to life participation, 8 targeted multiple barriers, and 1 targeted an environmental-institutional barrier. Life participation was assessed within a subdomain of a broader quality of life assessment (The Kidney Disease Quality of Life [KDQOL]-36 or the 36-Item Short-Form Health Survey [SF-36]) in 11 studies. The majority of assessments captured life participation in all major domains of participation (self-care, work, and leisure).
Eligibility screening at title/abstract stage was not performed in duplicate; articles not available in English were excluded.
Life participation has infrequently been prioritized as a health outcome in peritoneal dialysis (PD). Interventions have been narrow in focus given the range of challenges faced by people on PD and the holistic approaches used in other clinical populations. Future research should prioritize life participation as a key health outcome in PD and investigate the impact of interventions that address cognitive, affective, and environmental barriers to participation.
肾衰竭患者的生活可能会妨碍其参与生活活动（即参与有价值的生活活动）。生活参与最近被确定为接受腹膜透析治疗患者的首要健康结果，但在腹膜透析领域，这仍是一个相对未被充分探索的话题。
描述用于促进腹膜透析人群生活参与的干预措施，并突出有待进一步研究的研究空白。
根据乔安娜·布里格斯研究所的方法进行了一项范围综述。
检索了六个电子数据库（MEDLINE [OVID]、EMBASE、PsycINFO、Cochrane对照试验中心注册库、CINAHL Plus、SCOPUS）。
接受腹膜透析治疗的18岁及以上成年人。
任何将生活参与作为单独结果进行测量的专用量表或子量表。
在评审人员之间达到足够的评分者间信度（kappa>0.8）后，独立完成标题/摘要筛选。全文评审和数据提取进行了两次。使用计数、百分比和叙述性综合分析提取的数据，以描述文献中的模式。
在识别出13874条结果后，17项研究符合纳入标准。八项研究是在过去五年内进行的，中国是最常见的研究地点。只有两项研究将生活参与作为主要研究结果。八项研究针对生活参与的个人身体障碍，八项针对多种障碍，一项针对环境-机构障碍。在11项研究中，生活参与是在更广泛的生活质量评估（肾脏病生活质量[KDQOL]-36或36项简短健康调查[SF-36]）的子领域内进行评估的。大多数评估涵盖了参与的所有主要领域（自我护理、工作和休闲）的生活参与情况。
标题/摘要阶段的纳入标准筛选未进行两次；排除了非英文文章。
在腹膜透析（PD）中，生活参与很少被优先作为健康结果。鉴于腹膜透析患者面临的一系列挑战以及其他临床人群所采用的整体方法，干预措施的重点较为狭窄。未来的研究应将生活参与作为腹膜透析的关键健康结果进行优先考虑，并研究解决参与的认知、情感和环境障碍的干预措施的影响。
