Nova Díaz Diana Marcela, Errea Rodríguez María, Cabasés Hita Juan Manuel, Sánchez Iriso Eduardo
Economic Department, Public University of Navarra, Pamplona, Spain.
Freelance Researcher, Pamplona, Spain.
Gac Sanit. 2024;38:102416. doi: 10.1016/j.gaceta.2024.102416. Epub 2024 Aug 3.
To assess the self-perceived quality of life of institutionalized adults with cerebral palsy and to identify factors that influence their well-being, including sociodemographic, clinical, and diagnostic characteristics, as well as the degree of institutionalization.
A descriptive cross-sectional study was conducted using the San Martin Quality of Life Scale among adults with cerebral palsy. Data were collected in 2021 and 2022 in a sample of adults with cerebral palsy in Navarra, Spain. Multivariate regression was used to explore the relationship between quality of life and various influential factors.
The self-determination dimension positively influenced quality of life scores, whereas the social inclusion dimension had the opposite effect. Descriptive and regression analyses revealed that factors such as residing outside the city and a high degree of dependency had a negative influence on quality of life, while the degree of institutionalization had a positive impact.
It is important to highlight the positive effects of the degree of institutionalization on rehabilitation and well-being, as it seeks to enhance autonomy and social integration when talking about patient-centered models of institutionalization.
评估入住机构的脑瘫成年人自我感知的生活质量，并确定影响其幸福感的因素，包括社会人口学、临床和诊断特征，以及机构化程度。
采用圣马丁生活质量量表对脑瘫成年人进行描述性横断面研究。2021年和2022年在西班牙纳瓦拉的脑瘫成年人样本中收集数据。使用多元回归来探讨生活质量与各种影响因素之间的关系。
自我决定维度对生活质量得分有积极影响，而社会包容维度则有相反的影响。描述性和回归分析表明，居住在城外和高度依赖等因素对生活质量有负面影响，而机构化程度则有积极影响。
重要的是要强调机构化程度对康复和幸福感的积极影响，因为在谈论以患者为中心的机构化模式时，它旨在增强自主性和社会融合。
