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爱尔兰气胸手术公开网络信息的内容质量、可读性及可靠性评估

An Evaluation of the Content Quality, Readability, and Reliability of Publicly Available Web-Based Information on Pneumothorax Surgery in Ireland.

作者信息

Ho Martin P, Abrar Samin, Higgins Patrick P, Doddakula Kishore K

机构信息

Department of Cardiothoracic Surgery, Cork University Hospital, Cork, IRL.

出版信息

Cureus. 2024 Jul 4;16(7):e63800. doi: 10.7759/cureus.63800. eCollection 2024 Jul.

Abstract

Introduction The internet is increasingly the first port of call for patients introduced to new treatments. Unfortunately, many websites are of poor quality, thereby limiting patients' ability to make informed health decisions. Within thoracic surgery, the treatment options for pneumothoraces may be less intuitive for patients to understand compared to procedures such as lobectomies and wedge resections. Therefore, patients must receive high-quality information to make informed treatment decisions. No study to date has evaluated online information regarding pneumothorax surgery. Knowledge regarding the same may allow physicians to recommend appropriate websites to patients and supplement remaining knowledge gaps. Objective This study aims to evaluate the content, readability, and reliability of online information regarding pneumothorax surgery. Methods A total of 11 search terms including "pneumothorax surgery," "pleurectomy," and "pleurodesis" were each entered into Google, Bing, and Yahoo. The top 20 websites found through each search were screened, yielding 660 websites. Only free websites designed for patient consumption that provided information on pneumothorax surgery were included. This criterion excluded 581 websites, leaving 79 websites to be evaluated. To evaluate website reliability, the Journal of American Medical Association (JAMA) and DISCERN benchmark criteria were applied. To evaluate the readability, 10 standardized tools were utilized including the Flesch-Kincaid Reading Ease Score. To evaluate website content, a novel, self-designed 10-part questionnaire was utilized to assess whether information deemed essential by the authors was included. It evaluated whether websites comprehensively described the surgery process for patients, including pre- and post-operative care. Website authorship and year of publication were also noted. Results The mean JAMA score was 1.69 ± 1.29 out of 4, with only nine websites achieving all four reliability criteria. The median readability score was 13.42 (IQR: 11.48-16.23), which corresponded to a 13th-14th school grade standard. Only four websites were written at a sixth-grade reading level. In the novel content questionnaire, 31.6% of websites (n = 25) did not mention any side effects of pneumothorax surgery. Similarly, 39.2% (n = 31) did not mention alternative treatment options. There was no correlation between the date of website update and JAMA (r = 0.158, p = 0.123), DISCERN (r = 0.098, p = 0.341), or readability (r = 0.053, p = 0.606) scores. Conclusion Most websites were written above the sixth-grade reading level, as recommended by the US Department of Health and Human Services. Furthermore, the exclusion of essential information regarding pneumothorax surgery from websites highlights the current gaps in online information. These findings emphasize the need to create and disseminate comprehensive, reliable websites on pneumothorax surgery that enable patients to make informed health decisions.

摘要

引言 对于初次接触新治疗方法的患者而言,互联网越来越成为他们获取信息的首选途径。不幸的是,许多网站质量欠佳,从而限制了患者做出明智医疗决策的能力。在胸外科领域,与肺叶切除术和楔形切除术等手术相比,气胸的治疗选择可能较难被患者理解。因此,患者必须获取高质量信息才能做出明智的治疗决策。迄今为止,尚无研究评估过有关气胸手术的在线信息。了解这方面的信息可以让医生向患者推荐合适的网站,并填补其余的知识空白。目的 本研究旨在评估有关气胸手术的在线信息的内容、可读性和可靠性。方法 在谷歌、必应和雅虎中分别输入总共11个搜索词,包括“气胸手术”“胸膜切除术”和“胸膜固定术”。筛选通过每次搜索找到的前20个网站,共得到660个网站。仅纳入为患者设计的免费网站,这些网站提供有关气胸手术的信息。这一标准排除了581个网站,剩下79个网站待评估。为评估网站的可靠性,应用了美国医学会杂志(JAMA)和DISCERN基准标准。为评估可读性,使用了10种标准化工具,包括弗莱什-金凯德易读性分数。为评估网站内容,使用了一份新颖的、自行设计的10部分问卷,以评估作者认为必不可少的信息是否包含在内。该问卷评估网站是否全面描述了患者的手术过程,包括术前和术后护理。还记录了网站的作者和发布年份。结果 JAMA评分平均为1.69±1.29(满分4分),只有9个网站达到了所有四项可靠性标准。可读性得分中位数为13.42(四分位距:11.48 - 16.23),相当于13 - 14年级的标准。只有4个网站的写作水平相当于六年级。在新颖的内容问卷中,31.6%的网站(n = 25)未提及气胸手术的任何副作用。同样,39.2%(n = 31)未提及替代治疗方案。网站更新日期与JAMA评分(r = 0.158,p = 0.123)、DISCERN评分(r = 0.098,p = 0.341)或可读性评分(r = 0.053,p = 0.606)之间没有相关性。结论 大多数网站的写作水平高于美国卫生与公众服务部推荐的六年级水平。此外,网站未包含有关气胸手术的关键信息,凸显了当前在线信息的不足。这些发现强调了创建和传播有关气胸手术的全面、可靠网站的必要性,以便患者能够做出明智的医疗决策。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3c3b/11297662/6223ef03097e/cureus-0016-00000063800-i01.jpg

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