患者对多种疾病的参与度：对患者报告结局指标的系统评价

Patient engagement in multimorbidity: a systematic review of patient-reported outcome measures.

作者信息

Barello Serena, Anderson Gloria, Bosio Caterina, Lane Deirdre A, Leo Donato G, Lobban Trudie C A, Trevisan Caterina, Graffigna Guendalina

机构信息

EngageMinds HUB - Consumer, Food and Health Engagement Research Center, Università Cattolica del Sacro Cuore, Milan, Italy.

Department of Psychology, Università Cattolica del Sacro Cuore, Milan, Italy.

出版信息

Front Psychol. 2024 Jul 17;15:1345117. doi: 10.3389/fpsyg.2024.1345117. eCollection 2024.

DOI:10.3389/fpsyg.2024.1345117

PMID:39100568

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11294995/

Abstract

BACKGROUND

People with multimorbidity are increasingly engaged, enabled, and empowered to take responsibility for managing their health status. The purpose of the study was to systematically review and appraise the psychometric properties of tools measuring patient engagement in adults with multimorbidity and their applicability for use within engagement programs.

METHODS

PubMed, Scopus, Web of Science, and PsycInfo were searched from inception to 1 July 2021. Gray literature was searched using EBSCO host-database "Open dissertation". The reference lists of studies meeting the inclusion criteria were searched to identify additional eligible studies. The screening of the search results and the data extraction were performed independently by two reviewers. The methodological quality of the included studies was evaluated with the COSMIN checklist. Relevant data from all included articles were extracted and summarized in evidence synthesis tables.

RESULTS

Twenty articles on eight tools were included. We included tools that measure all four dimensions of patient engagement (i.e., engagement, empowerment, activation, and participation). Their psychometric properties were analyzed separately. Most tools were developed in the last 10 years in Europe or the USA. The comparison of the estimated psychometric properties of the retrieved tools highlighted a significant lack of reliable patient engagement measures for people with multimorbidity. Available measures capture a diversity of constructs and have very limited evidence of psychometric properties that are vital for patient-reported measures, such as invariance, reliability, and responsiveness.

CONCLUSION

This review clarifies how patient engagement, as operationalized in measures purporting to capture this concept, overlaps with, and differs from other related constructs in adults with multimorbidity. The methodological quality of psychometric tools measuring patient engagement in adults with multimorbidity could be improved.

SYSTEMATIC REVIEW REGISTRATION

https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=259968, identifier CRD42021259968.

摘要

背景

患有多种疾病的人群越来越多地参与、有能力并被赋予权力来负责管理自己的健康状况。本研究的目的是系统回顾和评估用于测量患有多种疾病的成年人患者参与度的工具的心理测量特性，以及它们在参与项目中的适用性。

方法

检索了PubMed、Scopus、Web of Science和PsycInfo数据库，检索时间从建库至2021年7月1日。使用EBSCO主机数据库“开放论文”检索灰色文献。检索符合纳入标准的研究的参考文献列表，以识别其他符合条件的研究。由两名评审员独立进行检索结果的筛选和数据提取。使用COSMIN清单评估纳入研究的方法学质量。从所有纳入文章中提取相关数据，并汇总在证据综合表中。

结果

纳入了关于八种工具的20篇文章。我们纳入了测量患者参与度所有四个维度（即参与、赋权、激活和参与）的工具。分别分析了它们的心理测量特性。大多数工具是在过去10年中在欧洲或美国开发的。对检索到的工具的估计心理测量特性的比较突出表明，对于患有多种疾病的人群，严重缺乏可靠的患者参与度测量方法。现有测量方法涵盖了多种结构，并且对于患者报告测量至关重要的心理测量特性（如不变性、可靠性和反应性）的证据非常有限。