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J Adv Nurs. 2024 Jan;80(1):377-386. doi: 10.1111/jan.15775. Epub 2023 Jul 17.
2
Multiple sclerosis diagnostic delay and its associated factors in Upper Egyptian patients.埃及上埃及多发性硬化症的诊断延迟及其相关因素。
Sci Rep. 2023 Feb 8;13(1):2249. doi: 10.1038/s41598-023-28864-x.
3
Advanced practice nurse roles in Europe: Implementation challenges, progress and lessons learnt.欧洲高级执业护士的角色:实施挑战、进展与经验教训
Int Nurs Rev. 2024 Jun;71(2):299-308. doi: 10.1111/inr.12800. Epub 2022 Sep 12.
4
The effect of nurse practitioner (NP-led) care on health-related quality of life in people with multiple sclerosis - a randomized trial.护士从业者(NP 主导)护理对多发性硬化症患者健康相关生活质量的影响 - 一项随机试验。
BMC Neurol. 2022 Jul 25;22(1):275. doi: 10.1186/s12883-022-02809-9.
5
Nurses in clinical trials: perceptions of impact on the research enterprise.临床试验中的护士:对研究事业影响的看法
J Res Nurs. 2022 Mar;27(1-2):50-65. doi: 10.1177/17449871211073757. Epub 2022 Apr 1.
6
Factors driving delayed time to multiple sclerosis diagnosis: Results from a population-based study.导致多发性硬化症诊断延迟的因素:一项基于人群的研究结果。
Mult Scler Relat Disord. 2022 Jan;57:103361. doi: 10.1016/j.msard.2021.103361. Epub 2021 Nov 1.
7
Behavioral aspects of nurse practitioners associated with optimal multiple sclerosis care in Spain.与西班牙最优多发性硬化症护理相关的护士从业者的行为方面。
PLoS One. 2021 Dec 8;16(12):e0261050. doi: 10.1371/journal.pone.0261050. eCollection 2021.
8
Skills, competencies, and policies for advanced practice critical care nursing in Europe: A scoping review.欧洲高级重症监护护理实践的技能、能力和政策:范围综述。
Nurse Educ Pract. 2021 Jul;54:103142. doi: 10.1016/j.nepr.2021.103142. Epub 2021 Jul 5.
9
Challenges in multiple sclerosis care: Results from an international mixed-methods study.多发性硬化症护理中的挑战:一项国际混合方法研究的结果。
Mult Scler Relat Disord. 2021 May;50:102854. doi: 10.1016/j.msard.2021.102854. Epub 2021 Feb 23.
10
Assessment of delayed diagnosis and treatment in multiple sclerosis patients during 1990-2016.评估 1990-2016 年多发性硬化症患者的延迟诊断和治疗情况。
Acta Neurol Belg. 2021 Feb;121(1):199-204. doi: 10.1007/s13760-020-01528-7. Epub 2020 Nov 12.

欧洲临床护士从业者在多发性硬化症早期诊断与管理中的关键作用:一份共识报告。

The Clinical Nurse Practitioner's Essential Role in Early Diagnosis and Management of Multiple Sclerosis in Europe: A Consensus Report.

作者信息

Pastore Francesco, Sanchez Miguel Angel Robles, Harrison Catharina Maria, Ntinoulis Konstantinos, Staller Sabine, Theano Tatsi, Shirol Santosh B

机构信息

From the Department of Biomedicine and Prevention, TorVergata University, Rome, Italy.

University Hospital Polyclinic of Bari, Department of Translational Biomedicine and Neurosciences, MS Centre Bari, Italy.

出版信息

Int J MS Care. 2024 Aug 5;26(Q3):208-213. doi: 10.7224/1537-2073.2023-070. eCollection 2024 May.

DOI:10.7224/1537-2073.2023-070
PMID:39105046
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11298979/
Abstract

Timely diagnosis of multiple sclerosis (MS) is a challenge due to factors such as prompt identification of symptoms and consequent delays in hospital visits and treatment initiation. In part to address this challenge, an expert scientific advisory panel of clinical nurse practitioners (CNPs) from different European nations was convened by Viatris on October 25, 2022, in Amsterdam, the Netherlands. This meeting was an interactive discussion to understand the role of clinical nurse practitioners in MS management. The objectives were to (1) understand the current delays in MS diagnosis from the perspective of expert CNPs; (2) determine the role of the CNP in MS management; and (3) identify the opportunities to improve accessibility, foster collaboration among stakeholders, and promote initiatives to educate people with MS. The recommendations of the panel underline the multidimensional role of CNPs in the management of MS at all stages. Health care stakeholders need to work together to achieve better access to treatment regimens and facilitate outcomes in the management of MS through shared decision-making and follow-ups. Further exploration of the role of CNPs in the management of MS, as well as recommendations for early diagnosis, will help both general practitioners and specialists better manage MS care.

摘要

由于症状识别迅速以及随之而来的就诊延迟和治疗启动延迟等因素,多发性硬化症(MS)的及时诊断具有挑战性。为了应对这一挑战,2022年10月25日,辉瑞在荷兰阿姆斯特丹召集了一个由来自不同欧洲国家的临床护理从业者(CNP)组成的专家科学咨询小组。这次会议是一次互动讨论,旨在了解临床护理从业者在MS管理中的作用。目标是:(1)从专家CNP的角度了解MS诊断当前存在的延迟情况;(2)确定CNP在MS管理中的作用;(3)确定改善可及性、促进利益相关者之间的合作以及推动针对MS患者的教育倡议的机会。该小组的建议强调了CNP在MS管理各阶段的多维度作用。医疗保健利益相关者需要共同努力,通过共同决策和随访,更好地获得治疗方案,并促进MS管理的成果。进一步探索CNP在MS管理中的作用以及早期诊断建议,将有助于全科医生和专科医生更好地管理MS护理。