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青少年和青年癌症幸存者的教育和职业抱负:定性分析。

Educational and occupational aspirations of adolescent and young adult cancer survivors: a qualitative analysis.

机构信息

Division of Pediatric Hematology/Oncology, Department of Pediatrics, Penn State Health Children's Hospital, 500 University Drive, Hershey, PA, USA.

Department of Health Policy and Administration, The Pennsylvania State University, University Park, PA, USA.

出版信息

Support Care Cancer. 2024 Aug 6;32(9):572. doi: 10.1007/s00520-024-08761-3.

Abstract

PURPOSE

Adolescent and young adult cancer survivors (AYACS) are patients diagnosed with cancer between 15 and 39 years of age. AYACS are often derailed from planned educational and occupational endeavors due to disruption from cancer treatment and its consequences. The study objective was to examine how a personal cancer diagnosis impacted AYACS' experiences related to these endeavors.

METHODS

Semi-structured interviews were conducted as part of a larger study assessing psychosocial challenges among a younger AYACS subset aged 15-25 years old at the time of cancer diagnosis. Interviews were coded based on responses and were used to develop themes related to educational and occupational endeavors.

RESULTS

Data were collected from 35 participants. Five themes emerged: (1) Pauses in educational attainment had a detrimental effect on educational goals for some participants, but further solidified and sculpted educational plans for others; (2) Although participants experienced challenges accomplishing educational goals, supportive school environments helped surmount these challenges; (3) Participants reflected on rethinking career aspirations, though some desired to pursue the same occupation planned before cancer diagnosis; (4) Participants experienced challenges, including physical and cognitive limitations, upon returning to work; and (5) Participants valued autonomy and normalcy through work and appreciated supportive and flexible work environments.

CONCLUSIONS

AYACS prioritize professional achievement, yet encounter challenges in achieving professional goals. Our findings create a foundation for developing and testing prospective interventions to promote continuance of school and work during cancer treatment when feasible, and proactive reintegration strategies for those who paused professional goals due to cancer treatment.

摘要

目的

青少年和年轻成年癌症幸存者(AYACS)是指诊断出患有癌症的年龄在 15 至 39 岁之间的患者。AYACS 经常因癌症治疗及其后果而中断计划中的教育和职业努力。本研究的目的是研究个人癌症诊断如何影响 AYACS 与这些努力相关的经历。

方法

作为评估诊断时年龄在 15-25 岁之间的年轻 AYACS 亚组的心理社会挑战的更大研究的一部分,进行了半结构化访谈。根据受访者的回答对访谈进行了编码,并用于开发与教育和职业努力相关的主题。

结果

从 35 名参与者中收集了数据。出现了五个主题:(1)中断教育程度对一些参与者的教育目标产生了不利影响,但对其他人进一步巩固和塑造了教育计划;(2)尽管参与者在实现教育目标方面遇到了挑战,但支持性的学校环境帮助他们克服了这些挑战;(3)参与者重新思考了职业抱负,尽管一些人希望从事与癌症诊断前计划相同的职业;(4)参与者在重返工作岗位时面临挑战,包括身体和认知方面的限制;(5)参与者通过工作重视自主权和正常性,并赞赏支持性和灵活的工作环境。

结论

AYACS 优先重视专业成就,但在实现职业目标方面会遇到挑战。我们的研究结果为制定和测试前瞻性干预措施奠定了基础,这些干预措施旨在促进在可行的情况下在癌症治疗期间继续学业和工作,并为那些因癌症治疗而暂停职业目标的人制定积极的重新融入策略。

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