个人癌症诊断对青少年/青年癌症幸存者心理健康的影响：一项混合方法研究。
The Impact of a Personal Cancer Diagnosis on the Psychological Health of Adolescent/Young Adult Cancer Survivors: A Mixed Methods Study.
作者信息
Rao Pooja, Devine Katie A, Bingen Kristin, Scott Allison M, Koehly Laura M, Rumbaugh Courtney L, Wasserman Emily, Costigan Heather J, Dandekar Smita, Songdej Natthapol, Blackall George F, Lengerich Eugene J, Van Scoy Lauren J
机构信息
Division of Pediatric Hematology/Oncology, Department of Pediatrics, Penn State Health Children's Hospital, Hershey, Pennsylvania, USA.
Rutgers Cancer Institute, New Brunswick, New Jersey, USA.
出版信息
Psychooncology. 2025 Sep;34(9):e70272. doi: 10.1002/pon.70272.
BACKGROUND
Adolescent/young adult cancer survivors (AYACS), describing people diagnosed with cancer between 15 and 39 years old across the cancer continuum, suffer from poor psychological health. Poor psychological health is associated with difficulty achieving professional goals, financial stress, and poorer health.
AIMS
The objective of this study was to use a mixed methods approach to understand AYACS' perspectives on how a personal cancer diagnosis impacts psychological health.
METHODS
In this convergent mixed methods study, data from 35 AYACS participants were collected consisting of Patient Reported Outcomes Measurement Information System Anxiety and Depression measures, a sociodemographic survey, and semi-structured interviews.
RESULTS
Mixed methods integration revealed the following for AYACS across the cancer continuum: (1) A need for proactive and longitudinal addressal of psychological health; (2) Promotion of social connectedness as a means of coping with illness; (3) A need for innovative and age-appropriate coping strategies; and (4) Promotion of resilience to help improve psychological health.
CONCLUSIONS
This study provides direction for intervention development to improve psychological health.
背景
青少年/青年癌症幸存者（AYACS）指的是在癌症病程中被诊断患有癌症的15至39岁人群，他们心理健康状况不佳。心理健康不佳与难以实现职业目标、经济压力以及健康状况较差有关。
目的
本研究的目的是采用混合方法来了解青少年/青年癌症幸存者对个人癌症诊断如何影响心理健康的看法。
方法
在这项收敛性混合方法研究中，收集了35名青少年/青年癌症幸存者参与者的数据，包括患者报告结局测量信息系统焦虑和抑郁量表、社会人口学调查以及半结构化访谈。
结果
混合方法整合揭示了癌症病程中青少年/青年癌症幸存者的以下情况：（1）需要对心理健康进行积极和长期的处理；（2）促进社会联系作为应对疾病的一种方式；（3）需要创新且适合年龄的应对策略；（4）促进心理韧性以帮助改善心理健康。
结论
本研究为改善心理健康的干预措施制定提供了方向。
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