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[患者报告的结局——患者主观视角在研究和临床护理中的作用]

[Patient-reported outcomes-the role of the patient's subjective perspective for research and clinical care].

作者信息

Dinkel Andreas, Jahnen Matthias

机构信息

Klinik und Poliklinik für Psychosomatische Medizin und Psychotherapie, Klinikum rechts der Isar, School of Medicine and Health, Technische Universität München, Langerstr. 3, 81675, München, Deutschland.

Klinik und Poliklinik für Urologie, Klinikum rechts der Isar, School of Medicine and Health, Technische Universität München, Ismaninger Str. 22, 81675, München, Deutschland.

出版信息

Urologie. 2024 Sep;63(9):886-892. doi: 10.1007/s00120-024-02405-4. Epub 2024 Aug 7.

DOI:10.1007/s00120-024-02405-4
PMID:39110186
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11343820/
Abstract

Because only patients can adequately assess symptoms, disability, and quality of life, concordance between a patient's and physician's assessment is often low. Accordingly, patient-reported outcomes (PROs) are increasingly used in research and routine clinical care. In daily practice, PROs are not only applied to measure the patient's perceived outcome of medical treatments, but also to assess their health status before intervention starts. Typically, several patient-reported outcome measures (PROMs), which are reliable and valid, are available for the assessment of the most important PROMs. In daily clinical practice, the integration of PROs can be useful for clinical assessment and treatment planning or for quality management. Currently, the most promising application is routine patient monitoring using digital PROMs (ePROMs). Systematic reviews have revealed that the routine use of PROMs in daily clinical care is associated with, among others, improved physician-patient communication, higher patient satisfaction, reduced symptom burden, higher quality of life, and improved survival. This effect is especially strong if health care professionals continuously receive the results of the PRO monitoring. Patients are usually inclined to disclose their health status, and the positive effects of routine patient monitoring are widely recognized. However, several barriers to using PROs and PROMs still exist.

摘要

由于只有患者能够充分评估症状、残疾情况和生活质量,因此患者与医生评估之间的一致性往往较低。因此,患者报告结局(PROs)在研究和日常临床护理中越来越多地被使用。在日常实践中,PROs不仅用于衡量患者对医疗治疗的感知结局,还用于在干预开始前评估他们的健康状况。通常,有几种可靠且有效的患者报告结局测量工具(PROMs)可用于评估最重要的PROMs。在日常临床实践中,PROs的整合对于临床评估、治疗计划或质量管理可能是有用的。目前,最有前景的应用是使用数字PROMs(电子PROMs,ePROMs)进行常规患者监测。系统评价表明,在日常临床护理中常规使用PROMs与改善医患沟通、提高患者满意度、减轻症状负担、提高生活质量和改善生存率等有关。如果医疗保健专业人员持续收到PRO监测结果,这种效果会尤其显著。患者通常倾向于披露自己的健康状况,常规患者监测的积极效果也得到了广泛认可。然而,使用PROs和PROMs仍然存在一些障碍。

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