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“看你在这儿玩记号笔玩得多开心!”:儿童生活专家对成人肿瘤学中幼稚化叙事的反击

"Look at You Having Fun With Your Markers in Here!": Child Life Specialists' Countering of Infantilizating Narratives in Adult Oncology.

作者信息

Molinaro Monica L, Taneja Shipra, Lysecki David L, McKean Heather, Bainbridge Daryl, Sussman Jonathan, Vanstone Meredith

机构信息

Institute of Health Sciences Education, McGill University, Montreal, QC, Canada.

Department of Family Medicine, McMaster University, Hamilton, ON, Canada.

出版信息

Qual Health Res. 2025 Feb;35(2):144-155. doi: 10.1177/10497323241257399. Epub 2024 Aug 7.

Abstract

Child life specialists are clinically trained and educated healthcare professionals who work in both healthcare environments and the community to address the needs of ill children and their families. However, child life specialists have previously reported potential for their role, responsibilities, and scope of practice to be misunderstood by their clinical colleagues. Using a narrative methodology, this paper presents the composite narrative of Diane, whose story encompasses the stories of the four child life specialists working in adult oncology environments in Ontario, Canada. Diane's narrative is a counter-story, which counters common assumptions, beliefs, and attitudes about child life specialists. Through spending significant time narrating the multitude of tasks that are encompassed within her scope of care, Diane reaffirms her identity as a valuable member of an interprofessional adult oncology team and counters infantilizing assumptions that she is merely a babysitter or child entertainer. Her story highlights how, while the introduction of child life specialists to adult healthcare environments is new, the work they do is of great benefit to families and their children. The lack of understanding from clinical colleagues of the role of child life specialists, however, hinders not only the development of relationships between colleagues, but also the care for these families.

摘要

儿童生活专家是经过临床培训和教育的医疗保健专业人员,他们在医疗环境和社区中工作,以满足患病儿童及其家庭的需求。然而,儿童生活专家此前曾报告称,他们的角色、职责和执业范围有可能被临床同事误解。本文采用叙事方法,呈现了黛安的综合叙事,她的故事涵盖了在加拿大安大略省成人肿瘤环境中工作的四位儿童生活专家的故事。黛安的叙事是一个反叙事,它反驳了关于儿童生活专家的常见假设、信念和态度。通过花大量时间讲述她护理范围内的众多任务,黛安重申了自己作为跨专业成人肿瘤团队中一名有价值成员的身份,并反驳了那种认为她仅仅是保姆或儿童娱乐者的幼稚假设。她的故事凸显了,虽然将儿童生活专家引入成人医疗环境是新事物,但他们所做的工作对家庭及其子女非常有益。然而,临床同事对儿童生活专家角色缺乏理解,不仅阻碍了同事之间关系的发展,也妨碍了对这些家庭的护理。

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本文引用的文献

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"There's So Much More Support We Could Have Provided": Child Life Specialists' Stories of the Challenges Working in Adult Oncology.
Qual Health Res. 2024 Sep;34(11):1084-1095. doi: 10.1177/10497323231215950. Epub 2023 Nov 30.
2
"I can't be the nurse I want to be": Counter-stories of moral distress in nurses' narratives of pediatric oncology caregiving.
Soc Sci Med. 2023 Mar;320:115677. doi: 10.1016/j.socscimed.2023.115677. Epub 2023 Jan 14.
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