Bhattarai Ankit, Aryal Sajana, Bhattarai Prabuddha, Ghimire Anup
Speech and Hearing Unit, Department of ENT-HNS, Maharajgunj Medical Campus, Tribhuvan University, Kathmandu, Nepal.
University of Texas at Austin, Texas, Austin, USA.
Indian J Otolaryngol Head Neck Surg. 2024 Aug;76(4):3114-3121. doi: 10.1007/s12070-024-04622-x. Epub 2024 Mar 29.
Millions of people worldwide suffer from hearing loss, a common sensory condition. However, new developments in cochlear implants have drastically transformed children's lives. However, there is still much to learn about the complex effects of cochlear implant interventions on children's lives and the unique difficulties experienced by Nepalese families. This study aims to comprehensively evaluate parents' perspectives regarding the quality of life of children with cochlear implants in Nepal. This study utilized the 'Children with Cochlear Implants: Parental Perspectives' (CCIPP) questionnaire, focusing on parents' viewpoints to assess the quality of life of Nepalese children with cochlear implants. A purposive sampling approach encompassed 22 families who completed the questionnaire. The study showed good parental ratings; the mean overall quality of life score was more than three (out of five), indicating significant gains following cochlear implantation. The greatest scores were for communication abilities, but issues with the implantation procedure and educational components persisted. A strong relationship existed between communication and several quality-of-life dimensions, highlighting communication's critical role in improving social interactions, well-being, and self-reliance. From the viewpoint of the parents of Nepalese children with cochlear implants, the current research represents a significant change in our knowledge of their quality of life. Even though there have been significant gains, targeted interventions are necessary to address post-implantation problems and educational challenges. The study recommends customized support networks and academic achievements to help Nepal's children with cochlear implant treatments.
全球数百万人患有听力损失这种常见的感官疾病。然而，人工耳蜗的新发展极大地改变了儿童的生活。然而，关于人工耳蜗干预对儿童生活的复杂影响以及尼泊尔家庭所经历的独特困难，仍有许多需要了解的地方。本研究旨在全面评估尼泊尔人工耳蜗植入儿童家长对其生活质量的看法。本研究使用了“人工耳蜗植入儿童：家长视角”（CCIPP）问卷，重点关注家长的观点，以评估尼泊尔人工耳蜗植入儿童的生活质量。采用目的抽样法，涵盖了22个完成问卷的家庭。研究显示家长评分良好；生活质量总体平均得分超过3分（满分5分），表明人工耳蜗植入后有显著改善。得分最高的是沟通能力，但植入过程和教育方面的问题仍然存在。沟通与几个生活质量维度之间存在密切关系，突出了沟通在改善社会互动、幸福感和自立能力方面的关键作用。从尼泊尔人工耳蜗植入儿童家长的角度来看，当前的研究代表了我们对他们生活质量认识的重大变化。尽管已经取得了显著进展，但仍需要有针对性的干预措施来解决植入后问题和教育挑战。该研究建议建立定制的支持网络和学业成就体系，以帮助接受人工耳蜗治疗的尼泊尔儿童。
