哈萨克斯坦人工耳蜗植入儿童的生活质量。
Quality of life in children with cochlear implants in Kazakhstan.
机构信息
Faculty of Medicine and Health Care, Al-Farabi Kazakh National University, Almaty, Kazakhstan.
Kazakhstan Scientific Center of Anti-Infectious Drugs, Nur-Sultan, Kazakhstan.
出版信息
BMC Pediatr. 2022 Apr 11;22(1):194. doi: 10.1186/s12887-022-03254-w.
BACKGROUND
Although cochlear implantation (CI) has been performed in Kazakhstan since 2007 little is known about quality of life of patients after CI. The aim of this study was to assess the health-related quality of life (HRQoL) of Kazakhstani children after CI.
METHODS
Altogether, 53 families with a child using a cochlear implant for at least 1 year participated in the study between July 20, 2019 and February 20, 2020 at the Audiological Сenter of Almaty, Kazakhstan. The parents/caregivers completed the "Children with Cochlear Implants: Parental Perspectives (CCIPP)" questionnaire.
RESULTS
'Well-being and happiness' subdomain of the HRQoL yielded the highest ratings. 'Communication', 'general functioning', 'self-reliance', and 'supporting the child' subdomains each achieved significant (p < 0.01) associations with all HRQoL subdomains. There were positive correlations between language used by the parent who completed the questionnaire (Kazakh or Russian) and three HRQoL subdomains, including 'well-being and happiness', 'supporting the child' and 'social relations'.
CONCLUSION
Parents/caregivers reported high quality of life in all HRQoL subdomains. Further research in this area with more detailed socio-demographic and medical history data is required to identify quality of life predictors in children after cochlear implantation.
背景
尽管 2007 年以来哈萨克斯坦已开展人工耳蜗植入（CI）手术，但对于 CI 后患者的生活质量知之甚少。本研究旨在评估哈萨克斯坦儿童 CI 后的健康相关生活质量（HRQoL）。
方法
2019 年 7 月 20 日至 2020 年 2 月 20 日，共有 53 个家庭（其子女植入人工耳蜗至少 1 年）在哈萨克斯坦阿拉木图的听觉中心参与了这项研究。家长/照顾者完成了“植入人工耳蜗的儿童：家长观点（CCIPP）”问卷。
结果
HRQoL 的“幸福感”子域获得了最高评分。“沟通”、“一般功能”、“自立”和“支持孩子”等子域均与所有 HRQoL 子域显著相关（p<0.01）。完成问卷的家长（哈萨克语或俄语）使用的语言与三个 HRQoL 子域（包括“幸福感”、“支持孩子”和“社会关系”）呈正相关。
结论
家长/照顾者报告在所有 HRQoL 子域中生活质量都很高。需要进一步研究该领域，以获取更多详细的社会人口学和病史数据，以确定人工耳蜗植入后儿童的生活质量预测因素。
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