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小儿人工耳蜗植入术后生活质量评估。

Evaluation of quality of life after paediatric cochlear implantation.

作者信息

Byčkova Jekaterina, Simonavičienė Justė, Mickevičienė Vaiva, Lesinskas Eugenijus

机构信息

Clinic of Ear, Nose, Throat and Eye Diseases, Faculty of Medicine, Vilnius University, Vilnius, Lithuania.

Paediatric Otolaryngology and Ophthalmology Department, Children's Hospital, Affiliate of Vilnius University Hospital Santaros Klinikos, Vilnius, Lithuania.

出版信息

Acta Med Litu. 2018;25(3):173-184. doi: 10.6001/actamedica.v25i3.3865.

Abstract

BACKGROUND

Cochlear implantation (CI) is the main treatment method for deaf children. CI influences not only communication, but also psychosocial outcomes in children with severe to profound hearing loss. Focusing on issues specific to CI (e.g., self-reliance, social relations, education) may provide a more accurate and relative view of functional status of paediatric cochlear implant users. The objectives of this study were to translate into Lithuanian and adapt an international questionnaire of the quality of life after cochlear implantation and to evaluate parental perspectives regarding CI and the child's progress after a minimum of two years after surgery.

MATERIALS AND METHODS

The parental questionnaire was used to evaluate the quality of life following cochlear implantation. The questionnaire includes 74 items covering two main domains: decision-making (26 items) and the outcomes of implantation (48 items). Quality of life is estimated according to the scores of eight sub-domains: communication, general functioning, well-being, self-reliance, social relations, education, effects of implantation, and supporting the child.

RESULTS

The paediatric sample consisted of 11 (39%) girls and 17 (61%) boys, whose mean age at the time of cochlear implantation was 2.41 ± 2.25 years, mean duration of the implant use 3.7 ± 1.3 years. All the grand means in the outcomes of implantation domain exceeded 3 on the 5-point scale, meaning that parents viewed the quality of life of their children as either average or better. Parents rated the sub-domains of communication (3.90 ± 0.77 points), social relations (4.05 ± 0.41), and supporting the child (3.89 ± 0.49) most positively.

CONCLUSIONS

According to parents, the quality of life improves after the cochlear implantation, especially in the fields of communication, social relations and supporting the child.

摘要

背景

人工耳蜗植入(CI)是聋儿的主要治疗方法。人工耳蜗植入不仅影响交流,还会影响重度至极重度听力损失儿童的心理社会结局。关注人工耳蜗植入特有的问题(如自立、社会关系、教育)可能会提供更准确、更相关的人工耳蜗植入儿童功能状态视图。本研究的目的是将一份国际人工耳蜗植入后生活质量问卷翻译成立陶宛语并进行改编,并在手术后至少两年评估家长对人工耳蜗植入及孩子进展的看法。

材料与方法

使用家长问卷评估人工耳蜗植入后的生活质量。该问卷包括74个项目,涵盖两个主要领域:决策(26个项目)和植入结局(48个项目)。根据八个子领域的得分评估生活质量:交流、总体功能、幸福感、自立、社会关系、教育、植入效果和支持孩子。

结果

儿科样本包括11名(39%)女孩和17名(61%)男孩,人工耳蜗植入时的平均年龄为2.41±2.25岁,植入使用的平均时长为3.7±1.3年。植入结局领域的所有总体均值在5分制中超过3分,这意味着家长认为他们孩子的生活质量为中等或更好。家长对交流(3.90±0.77分)、社会关系(4.05±0.41)和支持孩子(3.89±0.49)子领域的评价最为积极。

结论

根据家长的看法,人工耳蜗植入后生活质量有所改善,尤其是在交流、社会关系和支持孩子方面。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4a1e/6392602/adc1d6391c54/aml-25-173-g001.jpg

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