设计一个可互操作的患者门户，以增强针对脑积水患儿的高级执业护士服务。

Designing an interoperable patient portal to augment an Advanced Nurse Practitioner service for Children with hydrocephalus.

作者信息

Hughes Mary, Doyle Michelle, Moroney Dearbhla, Fennelly Orna

机构信息

Trinity School of Nursing and Midwifery, Dublin Ireland.

Neurosurgery Team, Children's Health Ireland at Temple Street, Dublin 1.

出版信息

Int J Nurs Stud Adv. 2024 Jul 8;7:100223. doi: 10.1016/j.ijnsa.2024.100223. eCollection 2024 Dec.

DOI:10.1016/j.ijnsa.2024.100223

PMID:39131241

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11315161/

Abstract

BACKGROUND

Children's Health Ireland (CHI), who govern and operate acute paediatric services for the greater Dublin area, are also the client for the new children's hospital project which will be Ireland's first fully digital hospital. Design, development and implementation of digital solutions has been prioritised by the National Strategy for Children's Nursing to transform and accelerate nurse-led services.

AIM

The aim of this phase of a larger study was to explore the perspectives and opinions of key stakeholders on the requirements, benefits, and challenges for a bespoke patient portal, with a specific focus on the ANP-led Neurosurgical Service and children and young people with hydrocephalus.

METHODS

Interviews and focus groups were held online, and data were recorded and transcribed verbatim. Twenty-three participants across eight sites were interviewed including parents, healthcare professionals, experts and management/administrators. Data were analysed using Braun and Clarke's (2006) framework.

RESULTS

Four key findings and considerations were identified in relation to patient portals in general and their interoperability with Electronic Health Records, as well as a bespoke patient portal for children and young people with hydrocephalus.

CONCLUSIONS

The availability of a patient portal for children and young people with hydrocephalus would be hugely advantageous to their parents, the ANP led nursing service, and healthcare professionals in both the neurosurgical service at CHI and at regional healthcare organisations as well as for administration, research, and reports. More timely access to health data as well as a consistent log of information and communications between patients and healthcare professionals, would be more efficient and effective than current practices.The augmented ANP-led Neurosurgical Nursing Service at CHI will act as a pilot project from which other nurse-led digital patient services can learn from.

STUDY REGISTRATION

This study was conducted between September 2022 and June 2023. It was registered in Trinity College Dublin, Ireland.

TWITTER ABSTRACT

A study exploring requirements, benefits, & challenges for an interoperable patient portal in an ANP led Service for children with hydrocephalus.

摘要

背景

儿童健康爱尔兰组织（CHI）负责管理和运营都柏林大区的急性儿科服务，也是新儿童医院项目的客户，该项目将成为爱尔兰首家全数字化医院。儿童护理国家战略已将数字解决方案的设计、开发和实施列为优先事项，以转变并加速由护士主导的服务。

目的

这项规模更大的研究的此阶段目的是，探讨关键利益相关者对定制患者门户的要求、益处和挑战的看法及意见，特别关注由高级护理从业者（ANP）主导的神经外科服务以及脑积水患儿和青少年。

方法

通过在线方式进行访谈和焦点小组讨论，并逐字记录和转录数据。来自八个地点的23名参与者接受了访谈，包括家长、医疗保健专业人员、专家以及管理人员/行政人员。使用布劳恩和克拉克（2006年）的框架对数据进行分析。

结果

在患者门户及其与电子健康记录的互操作性方面，以及针对脑积水患儿和青少年的定制患者门户方面，确定了四项关键发现和考量因素。

结论

为脑积水患儿和青少年提供患者门户，对其父母、由ANP主导的护理服务以及CHI的神经外科服务和地区医疗保健机构中的医疗保健专业人员，以及行政、研究和报告工作都将极为有利（大有裨益）。与当前做法相比，更及时地获取健康数据以及患者与医疗保健专业人员之间一致的信息和通信记录，将更高效且有效。CHI增强后的由ANP主导的神经外科护理服务将作为一个试点项目，其他由护士主导的数字患者服务可以从中学习。