van Kuppenveld Savannah Ir, van Os-Medendorp Harmieke, Tiemessen Nicole Am, van Delden Johannes Jm
University Medical Center Utrecht, Utrecht, Netherlands.
University Medical Center Utrecht, Department of Dermatology and Allergology, Utrecht, Netherlands.
J Med Internet Res. 2020 Feb 6;22(2):e13622. doi: 10.2196/13622.
The rapid implementation of patient portals, through which patients can view their electronic health record, creates possibilities for information exchange and communication between patients and health care professionals. However, real-time disclosure of test results and clinical reports poses a source of concern.
This study aimed to examine negative experiences resulting from real-time disclosure of medical information through a patient portal.
Data were collected over a 2-year period in 4 datasets consisting of incidents reported by health care professionals, complaints of patients, patient issues at a portal helpdesk, and a survey among health care professionals. Incidents, complaints, issues, and answers on the survey were counted and analyzed through an iterative process of coding.
Within the chosen time frame of 2 years, on average, 7978 patients per month logged into the portal at least once. The amount of negative incidents and complaints was limited. A total of 6 incidents, 4 complaints, and 2506 issues at the helpdesk concerning the patient portal were reported, of which only 2, 1, and 3 cases of these respective databases concerned real-time disclosure of medical information through the patient portal. Moreover, 32 out of 216 health care professionals reported patients that had negative experiences with real-time disclosure. Most negative consequences concerned confused and anxious patients when confronted with unexpected or incomprehensible results.
Real-time access through a patient portal did not substantially result in negative consequences. The negative consequences that did occur can be mitigated by adequate preparation and instruction of patients concerning the various functionalities of the patient portal, real-time disclosure of test results in particular, and can also be managed through educating health care professionals about the patient portal and making adjustments in the daily practice of health care professionals.
患者门户网站的迅速普及使患者能够查看自己的电子健康记录,为患者与医护人员之间的信息交流和沟通创造了条件。然而,检验结果和临床报告的实时披露引发了人们的担忧。
本研究旨在调查通过患者门户网站实时披露医疗信息所产生的负面体验。
在2年时间里收集了4个数据集中的数据,这些数据集包括医护人员报告的事件、患者投诉、门户网站帮助台的患者问题以及医护人员调查。通过反复编码过程对调查中的事件、投诉、问题和答案进行计数和分析。
在选定的2年时间范围内,平均每月有7978名患者至少登录一次门户网站。负面事件和投诉数量有限。共报告了6起事件、4起投诉以及帮助台收到的2506个与患者门户网站有关的问题,其中这些各自数据库中只有2起、1起和3起案件涉及通过患者门户网站实时披露医疗信息。此外,216名医护人员中有32人报告患者在实时披露方面有负面体验。大多数负面后果涉及患者面对意外或难以理解的结果时感到困惑和焦虑。
通过患者门户网站的实时访问并没有产生实质性的负面后果。对于确实发生的负面后果,可以通过让患者充分了解患者门户网站的各种功能,特别是检验结果的实时披露,并通过对医护人员进行患者门户网站教育以及在医护人员日常工作中进行调整来加以缓解和管理。