The Education University of Hong Kong, Tai Po, Hong Kong SAR, China.
Front Public Health. 2024 Jul 29;12:1398944. doi: 10.3389/fpubh.2024.1398944. eCollection 2024.
Measuring health-related quality of life (HRQoL) is important because it can serve as an indicator or a predictor of subsequent mortality or morbidity. HRQoL has been shown to be directly related to child growth and development and indirectly related to the healthcare costs of young children. Existing measures of HRQoL in children have heavily relied on traditional questionnaires that use age-suited versions or parent proxy questionnaires. However, both of these methods may present with different types of biases and may misrepresent underlying HRQoL. The current mini reivew will first illustrate these methodological limitations and highlight the potential use of pictorial scales in addition to discussing their suitability for specifically measuring HRQoL as an alternative. We will also synthesize existing recommendations on the development of pictorial scales to provide a protocol as a recommendation to researchers who are aiming to develop an overall HRQoL pictorial scale that is suited for children.
衡量与健康相关的生活质量（HRQoL）很重要，因为它可以作为后续死亡率或发病率的指标或预测因素。HRQoL 已被证明与儿童的生长发育直接相关，并与幼儿的医疗保健成本间接相关。现有的儿童 HRQoL 衡量标准主要依赖于使用年龄适宜版本或家长代理问卷的传统问卷。然而，这两种方法都可能存在不同类型的偏差，并且可能无法真实反映潜在的 HRQoL。本迷你综述首先将说明这些方法学上的局限性，并强调除了讨论其作为替代方法专门衡量 HRQoL 的适用性之外，还可以使用图像量表。我们还将综合现有的关于图像量表开发的建议，为旨在开发适合儿童的整体 HRQoL 图像量表的研究人员提供一个方案作为建议。
