David Jennie G, Dotson Jennifer L, Mackner Laura
Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, 43205, USA.
Department of Pediatrics, The Ohio State Wexner Medical Center, Columbus, OH, USA.
J Clin Psychol Med Settings. 2025 Jun;32(2):278-285. doi: 10.1007/s10880-024-10036-2. Epub 2024 Aug 14.
Pediatric Inflammatory Bowel Disease (IBD) is a chronic illness where patients may undergo ostomy surgery. Medical decision-making (MDM) for ostomy surgery is complex for patients/families and multidisciplinary healthcare professionals (HCPs) alike, with current uncertainty about how multidisciplinary HCPs think about ostomy care to inform future interventions to facilitate equitable multidisciplinary care for patients. This study sought to understand pediatric IBD multidisciplinary HCPs' perceptions regarding ostomy-related MDM and education. Multidisciplinary HCPs (e.g., gastroenterology medical providers, social workers, surgeons, and ostomy nurses) participated in semi-structured focus groups. Focus group data underwent qualitative analysis to identify themes. Three multidisciplinary focus groups were conducted, with n = 12 participants across all groups. Qualitative analysis identified three main themes, including (1) HCP perceptions of ostomies, (2) Patient/family-related factors, and (3) Professional roles and collaboration challenges. Ostomy surgery in pediatric IBD requires complex multidisciplinary MDM and education. Perspectives of multidisciplinary HCPs identified patient, HCP, and systems factors that may impact MDM for ostomy surgery. This work highlights nuances in MDM and education in IBD, and the critical role of ongoing research and improved standardized processes to coordinate multidisciplinary ostomy-related MDM and education in this population.
小儿炎症性肠病（IBD）是一种慢性病，患者可能需要接受造口手术。对于患者/家庭以及多学科医疗保健专业人员（HCP）而言，造口手术的医疗决策（MDM）都很复杂，目前尚不确定多学科HCP如何看待造口护理，以指导未来的干预措施，为患者提供公平的多学科护理。本研究旨在了解小儿IBD多学科HCP对与造口相关的MDM和教育的看法。多学科HCP（如胃肠病学医疗提供者、社会工作者、外科医生和造口护士）参加了半结构化焦点小组。对焦点小组数据进行定性分析以确定主题。共进行了三个多学科焦点小组，所有小组共有12名参与者。定性分析确定了三个主要主题，包括（1）HCP对造口的看法，（2）与患者/家庭相关的因素，以及（3）专业角色和协作挑战。小儿IBD的造口手术需要复杂的多学科MDM和教育。多学科HCP的观点确定了可能影响造口手术MDM的患者、HCP和系统因素。这项工作突出了IBD中MDM和教育的细微差别，以及持续研究和改进标准化流程在协调该人群多学科造口相关MDM和教育方面的关键作用。
