Cohen Samuel A, Brant Arthur, Rayess Nadim, Rahimy Ehsan, Pan Carolyn, Fisher Ann Caroline, Pershing Suzann, Do Diana
Byers Eye Institute, Stanford University School of Medicine, Stanford, CA, USA.
Retina Associates of Florida, Tampa, FL, USA.
J Vitreoretin Dis. 2024 Apr 30;8(4):421-427. doi: 10.1177/24741264241250156. eCollection 2024 Jul-Aug.
To evaluate the readability, accountability, accessibility, and source of online patient education materials for treatment of age-related macular degeneration (AMD) and to quantify public interest in Syfovre and geographic atrophy after US Food and Drug Administration (FDA) approval. Websites were classified into 4 categories by information source. Readability was assessed using 5 validated readability indices. Accountability was assessed using 4 benchmarks of the (). Accessibility was evaluated using 3 established criteria. The Google Trends tool was used to evaluate temporal trends in public interest in "Syfovre" and "geographic atrophy" in the months after FDA approval. Of 100 websites analyzed, 22% were written below the recommended sixth-grade reading level. The mean (±SD) grade level of analyzed articles was 9.76 ± 3.35. Websites averaged 1.40 ± 1.39 (of 4) accountability metrics. The majority of articles (67%) were from private practice/independent organizations. A significant increase in the public interest in the terms "Syfovre" and "geographic atrophy" after FDA approval was found with the Google Trends tool ( < .001). Patient education materials related to AMD treatment are often written at inappropriate reading levels and lack established accountability and accessibility metrics. Articles from national organizations ranked highest on accessibility metrics but were less visible on a Google search, suggesting the need for visibility-enhancing measures. Patient education materials related to the term "Syfovre" had the highest average reading level and low accountability, suggesting the need to modify resources to best address the needs of an increasingly curious public.
评估用于治疗年龄相关性黄斑变性（AMD）的在线患者教育材料的可读性、可问责性、可及性及来源，并在美国食品药品监督管理局（FDA）批准后量化公众对Syfovre和地图样萎缩的兴趣。网站根据信息来源分为4类。使用5种经过验证的可读性指数评估可读性。使用（）的4个基准评估可问责性。使用3项既定标准评估可及性。谷歌趋势工具用于评估FDA批准后数月内公众对“Syfovre”和“地图样萎缩”兴趣的时间趋势。在分析的100个网站中，22%的网站写作水平低于推荐的六年级阅读水平。分析文章的平均（±标准差）年级水平为9.76±3.35。网站的可问责性指标平均为1.40±1.39（满分4分）。大多数文章（67%）来自私人执业/独立组织。使用谷歌趋势工具发现，FDA批准后，公众对“Syfovre”和“地图样萎缩”这两个术语的兴趣显著增加（P<0.001）。与AMD治疗相关的患者教育材料通常写作水平不合适，缺乏既定的可问责性和可及性指标。来自国家组织的文章在可及性指标上排名最高，但在谷歌搜索中不太显眼，这表明需要采取提高可见性的措施。与“Syfovre”一词相关的患者教育材料平均阅读水平最高，但可问责性较低，这表明需要修改资源以最好地满足日益好奇的公众的需求。
