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为患有严重精神疾病的成年人的照料者调整家长连接器项目:家庭连接器的经验。

Adapting the Parent Connector program for caregivers of adults with SMI: the Family Connector experience.

作者信息

Cervantes Paige E, Gendler Charlotte, Markowitz Lori, Rose Meggin, Shorter Priscilla, Mason Sally, Hernandez Tanya, Hoagwood Kimberly E

机构信息

Department of Psychiatry, Virginia Commonwealth University, Richmond, Virginia, USA.

Department of Child and Adolescent Psychiatry, NYU Grossman School of Medicine, New York, New York, USA.

出版信息

Npj Ment Health Res. 2024 Aug 18;3(1):40. doi: 10.1038/s44184-024-00079-6.

Abstract

Caregivers play an essential role in the recovery of their adult loved ones with serious mental illness (SMI). Promoting caregiver empowerment and well-being is critical but has often been overlooked. Family peer interventions are well-suited to fill this need; however, research is limited supporting their use with caregivers of adults with SMI. Our team is currently engaged in a study evaluating an adapted version of the evidenced-based Parent Connectors program, renamed Family Connectors (FC), for caregivers of young adults recently discharged from the First Episode Psychosis program in New York (OnTrackNY). This paper, written collaboratively with family peer professionals, describes the adaptation process we followed to systematically document the family peer professional experience one year into delivering the FC program to this novel population. Modifications made to improve intervention fit included tailoring the content of the intervention, incorporating an outside approach into the program, lengthening the service in some cases, and adding a weekly peer supervision meeting. We hope that these insights are used to inform future efforts to advance support for families of loved ones with SMI, and more broadly, that our approach serves as a model for effective collaboration to improve the application of peer support services for unique groups.

摘要

照顾者在患有严重精神疾病(SMI)的成年亲人的康复过程中发挥着至关重要的作用。促进照顾者的赋权和福祉至关重要,但却常常被忽视。家庭同伴干预非常适合满足这一需求;然而,支持其用于患有SMI的成年照顾者的研究有限。我们的团队目前正在进行一项研究,评估对循证的家长连接器项目进行改编后的版本,重新命名为家庭连接器(FC),用于纽约首次发作精神病项目(OnTrackNY)中最近出院的年轻成年人的照顾者。这篇与家庭同伴专业人员合作撰写的论文,描述了我们在向这一特殊人群提供FC项目一年后,为系统记录家庭同伴专业人员的经历所遵循的改编过程。为提高干预适应性所做的修改包括调整干预内容、将外部方法纳入项目、在某些情况下延长服务时间,以及增加每周一次的同伴监督会议。我们希望这些见解能为今后推进对患有SMI的亲人家庭的支持工作提供参考,更广泛地说,我们的方法能成为有效合作的典范,以改善针对特殊群体的同伴支持服务的应用。

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