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基于iPad的唇腭裂患者家长互动式教育

Interactive iPad-Based Education for Parents of Patients with Cleft Lip and Palate.

作者信息

Arora Jagmeet S, Khoshab Nima, Donnelly Megan, Vargas Sharon, Zadeh Touran, Vyas Raj M

机构信息

School of Medicine, University of California Irvine, Irvine, CA, USA.

Department of Plastic Surgery, University of California, Irvine, Orange, CA, USA.

出版信息

Cleft Palate Craniofac J. 2025 Sep;62(9):1581-1587. doi: 10.1177/10556656241275534. Epub 2024 Aug 18.

Abstract

ObjectiveTo assess the effectiveness of an interactive iPad-based educational module (cleft iBook) in enhancing parent/caregiver education related to cleft lip and/or cleft palate (CL/P) care.DesignA prospective study involving pre- and post-intervention surveys.SettingThe study was conducted at a craniofacial clinic in a dedicated children's hospital specifically during initial consultations for CL/P care.ParticipantsThirty-two participants (parents/legal guardians/caregivers) ≥18 years of age, English and/or Spanish-speaking, and attending with a child with CL/P.InterventionsParticipants were provided with iPads and engaged with the interactive iPad-based educational module. Pre- and post-intervention surveys were administered.Main Outcome Measure(s)The survey assessed the understanding of a CL/P diagnosis and management and usability of the iBook. Survey responses were graded on a 5-point Likert scale. Total scores for pre- and post-intervention surveys were compared.ResultsUtilizing the cleft iBook module before consultation significantly enhanced comprehension in multiple domains: prenatal development of CL/P, dento-facial molding, surgical techniques, steps after the initial consultation, postoperative care, and the necessity of long-term care for affected children (< .01). Cumulative survey scores increased by 10.2 points, reflecting significantly improved responses regarding overall comprehension (< .001).ConclusionsThe interactive, iPad-based cleft educational module emerges as a viable, digital strategy for providing education and empowerment to parents and caregivers navigating the challenges of caring for a child with CL/P. The cleft iBook serves as a readily accessible resource, fostering connections among the child, caregivers, and care team.

摘要

目的

评估基于iPad的交互式教育模块(唇腭裂电子书)在加强与唇裂和/或腭裂(CL/P)护理相关的家长/照顾者教育方面的有效性。

设计

一项涉及干预前后调查的前瞻性研究。

背景

该研究在一家专门儿童医院的颅面诊所进行,具体是在CL/P护理的初次咨询期间。

参与者

32名年龄≥18岁、讲英语和/或西班牙语且带着CL/P患儿前来就诊的参与者(家长/法定监护人/照顾者)。

干预措施

为参与者提供iPad,并让他们使用基于iPad的交互式教育模块。进行干预前后的调查。

主要观察指标

该调查评估对CL/P诊断和管理的理解以及电子书的可用性。调查回复按5点李克特量表评分。比较干预前后调查的总分。

结果

在咨询前使用唇腭裂电子书模块显著提高了多个领域的理解

CL/P的产前发育、牙面塑形、手术技术、初次咨询后的步骤、术后护理以及对患病儿童长期护理的必要性(<0.01)。累积调查得分提高了10.2分,反映出在整体理解方面的回复有显著改善(<0.001)。

结论

基于iPad的交互式唇腭裂教育模块成为一种可行的数字策略,可为应对照顾CL/P患儿挑战的家长和照顾者提供教育并增强其能力。唇腭裂电子书是一种易于获取的资源,促进了患儿、照顾者和护理团队之间的联系。

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