Mallory Kylie D, Al-Hakeem Hiba, Alam Shazeen, Brassel Sandy, Isaacs Tamiko, Basarke Sonya, Hooper Marie, Hickling Andrea, Scratch Shannon E
Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, 150 Kilgour Road, Toronto, ON M4G 1R8, Canada.
Department of Occupational Science and Occupational Therapy, Temerty Faculty of Medicine, University of Toronto, 60-500 University Avenue, Toronto, ON M5G 1V7, Canada.
PEC Innov. 2024 Jul 17;5:100326. doi: 10.1016/j.pecinn.2024.100326. eCollection 2024 Dec 15.
Thirty-eight children participated in and completed questionnaires (Pediatric Quality of Life [PedsQL™], Social Support Scale for Children [SSSC]) one week pre- and post-intervention. Conventional content analysis was used to explore siblings' open-ended responses on a post-participation feedback form.
No significant differences in PedsQL™ and SSSC scores were observed after participating in . Despite this, siblings had positive feedback about and discussed: 1) Engaging in group learning and activities, 2) Meeting other siblings, and 3) Applying content to their daily life.
Factors related to the COVID-19 pandemic such as family stress, school closures, virtual learning, and social distancing likely impacted study results. Although there were no significant changes in QoL and social support, siblings found to be fun, meaningful, and engaging.
Siblings of children with disabilities can experience psychosocial challenges and there are few virtual interventions designed for this population. was adapted to address this gap and increase access and support for siblings of children with disabilities.
1）研究参与一项针对残疾儿童兄弟姐妹的基于小组的虚拟干预措施是否会影响兄弟姐妹对生活质量（QoL）和社会支持的认知；2）探索兄弟姐妹对该干预措施的反馈。
38名儿童参与了该干预措施，并在干预前一周和干预后完成了问卷调查（儿童生活质量量表[PedsQL™]、儿童社会支持量表[SSSC]）。采用常规内容分析法，探索兄弟姐妹在参与后的反馈表上的开放式回答。
参与该干预措施后，未观察到PedsQL™和SSSC分数有显著差异。尽管如此，兄弟姐妹对该干预措施给出了积极反馈，并讨论了：1）参与小组学习和活动；2）结识其他兄弟姐妹；3）将干预措施的内容应用到日常生活中。
与新冠疫情相关的因素，如家庭压力、学校关闭、虚拟学习和社交距离，可能影响了研究结果。虽然生活质量和社会支持没有显著变化，但兄弟姐妹认为该干预措施有趣、有意义且引人入胜。
残疾儿童的兄弟姐妹可能会经历心理社会挑战，而专门为这一群体设计的虚拟干预措施很少。该干预措施经过调整，以填补这一空白，并增加对残疾儿童兄弟姐妹的帮助和支持。
