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运用全面的幸福能力概念进行福祉评估:最佳适配框架综合分析

The Use of a Comprehensive Concept of Capability for Wellbeing Assessment: A Best-Fit Framework Synthesis.

作者信息

Ubels Jasper, Hernandez-Villafuerte Karla, Niebauer Erica, Schlander Michael

机构信息

Division of Health Economics, German Cancer Research Center (DKFZ), Im Neuenheimer Feld 280, 69120, Heidelberg, Germany.

Mannheim Medical Faculty, University of Heidelberg, Mannheim, Germany.

出版信息

Health Care Anal. 2024 Aug 19. doi: 10.1007/s10728-024-00488-w.

DOI:10.1007/s10728-024-00488-w
PMID:39158650
Abstract

Developing an instrument with the capability approach can be challenging, since the capability concept of Sen is ambiguous concerning the burdens that people experience whilst achieving their capabilities. A solution is to develop instruments with a comprehensive concept of capability, such as the concept of 'option-freedom'. This study aims to develop a theoretical framework for instrument development with the concept of option-freedom. A best-fit framework synthesis was conducted with seven qualitative papers by one researcher. Two researchers supported the synthesis by discussing interim results during the synthesis. A priori concepts of option-freedom were used to deductively code against. Themes and subthemes were developed inductively when data did not match a priori themes. Seven paper were identified that fulfilled the eligibility criteria. Four themes emerged from the synthesis. (1) Option Wellbeing represents a range of options that need to be satisfied for individuals to experience wellbeing. (2) Self-Realization represents that there are experiences in an individual's life that have value beyond realizing options. (3) Perceived Access to Options represents the perceived ability of individuals to realize freedoms. (4) Perceived Control represents the experience of having control. Developing an instrument with the proposed framework has two benefits. First, it acknowledges the importance of assessing impediments in realizing capabilities for wellbeing assessment. Secondly, the themes form a broad informational base by including themes related to subjective wellbeing. Future research should study the feasibility of implementing the framework for instrument development.

摘要

运用能力方法开发一种工具可能具有挑战性,因为森的能力概念在人们实现其能力时所经历的负担方面并不明确。一种解决方案是开发具有综合能力概念的工具,比如“选择自由”概念。本研究旨在用选择自由概念为工具开发构建一个理论框架。由一名研究人员对七篇定性论文进行了最佳拟合框架综合分析。两名研究人员在综合分析过程中通过讨论中期结果为综合分析提供了支持。运用先验的选择自由概念进行演绎编码。当数据与先验主题不匹配时,归纳得出主题和子主题。确定了七篇符合入选标准的论文。综合分析得出了四个主题。(1)选择幸福感代表了个人体验幸福感所需满足的一系列选择。(2)自我实现代表个人生活中存在超越实现选择的有价值的体验。(3)感知到的选择机会代表个人感知到的实现自由的能力。(4)感知到的控制代表拥有控制权的体验。用所提出的框架开发一种工具具有两个好处。首先,它承认在进行幸福感评估时评估实现能力的障碍的重要性。其次,这些主题通过纳入与主观幸福感相关的主题形成了一个广泛的信息基础。未来的研究应该探讨实施该工具开发框架的可行性。

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本文引用的文献

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Capability of deaf children with a cochlear implant.聋儿的耳蜗植入能力。
Disabil Rehabil. 2021 Jul;43(14):1989-1994. doi: 10.1080/09638288.2019.1689580. Epub 2019 Nov 14.
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Patient centered outcome measurement in health economics: beyond EQ-5D and the Quality-Adjusted Life-Year-where are we now?健康经济学中以患者为中心的结局测量:超越EQ-5D和质量调整生命年——我们现在处于什么位置?
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We Propose a Novel Measure for Social Welfare and Public Health: Capability-Adjusted Life-Years, CALYs.
我们提出了一种衡量社会福利和公共卫生的新方法:能力调整生命年(CALYs)。
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Palliat Med. 2014 Feb;28(2):151-7. doi: 10.1177/0269216313489368. Epub 2013 May 22.
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What do patients with advanced incurable cancer want from the management of their pain? A qualitative study.晚期不治之症癌症患者对疼痛管理有何期望?一项定性研究。
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BMC Med Res Methodol. 2013 Mar 13;13:37. doi: 10.1186/1471-2288-13-37.
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