Marsh Meghan, Shah Syeda Rafia, Munce Sarah E P, Perrier Laure, Lee Tin-Suet Joan, Colella Tracey J F, Kokorelias Kristina Marie
Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, ON, Canada.
KITE, Toronto Rehabiliation Institute, Toronto, ON, Canada.
JMIR Med Inform. 2024 Aug 19;12:e50307. doi: 10.2196/50307.
Patient navigation interventions (PNIs) can provide personalized support and promote appropriate coordination or continuation of health and social care services. Online PNIs have demonstrated excellent potential for improving patient knowledge, transition readiness, self-efficacy, and use of services. However, the characteristics (ie, intervention type, mode of delivery, duration, frequency, outcomes and outcome measures, underlying theories or mechanisms of change of the intervention, and impact) of existing online PNIs to support the health and social needs of individuals with illness remain unclear.
This scoping review of the existing literature aims to identify the characteristics of existing online PNIs reported in the literature.
A scoping review based on the guidelines outlined in the Joanna Briggs Institute framework was conducted. A search for peer-reviewed literature published between 1989 and 2022 on online PNIs was conducted using MEDLINE, CINAHL, Embase, PsycInfo, and Cochrane Library databases. Two independent reviewers conducted 2 levels of screening. Data abstraction was conducted to outline key study characteristics (eg, study design, population, and intervention characteristics). The data were analyzed using descriptive statistics and qualitative content analysis.
A total of 100 studies met the inclusion criteria. Our findings indicate that a variety of study designs are used to describe and evaluate online PNIs, with literature being published between 2003 and 2022 in Western countries. Of these studies, 39 (39%) studies were randomized controlled trials. In addition, we noticed an increase in reported online PNIs since 2019. The majority of studies involved White females with a diagnosis of cancer and a lack of participants aged 70 years or older was observed. Most online PNIs provide support through navigation, self-management and lifestyle changes, counseling, coaching, education, or a combination of support. Variation was noted in terms of mode of delivery, duration, and frequency. Only a small number of studies described theoretical frameworks or change mechanisms to guide intervention.
To our knowledge, this is the first review to comprehensively synthesize the existing literature on online PNIs, by focusing on the characteristics of interventions and studies in this area. Inconsistency in reporting the country of publication, population characteristics, duration and frequency of interventions, and a lack of the use of underlying theories and working mechanisms to inform intervention development, provide guidance for the reporting of future online PNIs.
患者导航干预措施(PNIs)可以提供个性化支持,并促进卫生和社会护理服务的适当协调或延续。在线PNIs已显示出在提高患者知识水平、过渡准备情况、自我效能感以及服务利用方面的巨大潜力。然而,现有支持患病个体健康和社会需求的在线PNIs的特征(即干预类型、提供方式、持续时间、频率、结果及结果测量、干预的潜在理论或变化机制以及影响)仍不明确。
本对现有文献的范围综述旨在确定文献中报道的现有在线PNIs的特征。
根据乔安娜·布里格斯研究所框架中概述的指南进行范围综述。使用MEDLINE、CINAHL、Embase、PsycInfo和Cochrane图书馆数据库,检索1989年至2022年间发表的关于在线PNIs的同行评审文献。两名独立评审员进行了两个层次的筛选。进行数据提取以概述关键研究特征(如研究设计、人群和干预特征)。使用描述性统计和定性内容分析对数据进行分析。
共有100项研究符合纳入标准。我们的研究结果表明,各种研究设计被用于描述和评估在线PNIs,2003年至2022年间西方国家发表了相关文献。在这些研究中,39项(39%)研究为随机对照试验。此外,我们注意到自2019年以来报道的在线PNIs有所增加。大多数研究涉及被诊断患有癌症的白人女性,且观察到缺乏70岁及以上的参与者。大多数在线PNIs通过导航、自我管理和生活方式改变、咨询、指导、教育或多种支持方式相结合来提供支持。在提供方式、持续时间和频率方面存在差异。只有少数研究描述了指导干预的理论框架或变化机制。
据我们所知,这是首次通过关注该领域干预措施和研究的特征,全面综合现有关于在线PNIs的文献的综述。在报告发表国家、人群特征、干预的持续时间和频率方面存在不一致,并且缺乏使用潜在理论和工作机制为干预发展提供信息的情况,这为未来在线PNIs的报告提供了指导。