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澳大利亚和意大利自闭症儿童的养育经历:一项定性跨文化比较。

Experiences of parenting for autistic children in Australia and Italy: a qualitative cross-cultural comparison.

作者信息

Frigerio Alessandra, Knight Tess, Rella Riccardo, Sinigaglia Elena, Camussi Elisabetta, Montali Lorenzo

机构信息

Department of Psychology, Sigmund Freud University, Milan, Italy.

Cairnmillar Institute, Hawthorn East, VIC, Australia.

出版信息

Front Psychol. 2024 Aug 5;15:1409234. doi: 10.3389/fpsyg.2024.1409234. eCollection 2024.

Abstract

INTRODUCTION

Parents vary in their gradual adaptation to the demands of caring for an autistic child. Their experiences can be positive, negative, or a combination of both, depending on the severity of the cases and various personal and social factors. Cross-cultural comparisons can aid in understanding how contextual factors, such as the availability of social and health services, and cultural factors, such as family relationships and the distribution of care burden, may influence the caregiving experience. However, there is a limited amount of cross-cultural research on this topic, which is almost exclusively quantitative.

AIMS AND METHODS

From an ecocultural perspective, our interview-based study aimed to explore the experiences of Australian (15) and Italian (11) parents of autistic children living in their respective countries.

RESULTS

The analysis identified three main themes. , , and .

DISCUSSION

Our comparative approach reveals both commonalities and differences between the two groups of participants. The similarities support features previously identified in the literature: the emotional and physical burden on parents and the positive impact on parental identity. The differences relate to the diagnostic process, interactions with health professionals, the impact of autism on family dynamics and parental perspectives, and the role assigned to siblings. Despite facing similar challenges, these differences reveal how Italian and Australian parents articulate different understandings linked to social and cultural differences.

摘要

引言

父母在逐渐适应照顾自闭症儿童的需求方面存在差异。他们的经历可能是积极的、消极的,或两者兼而有之,这取决于病例的严重程度以及各种个人和社会因素。跨文化比较有助于理解诸如社会和卫生服务的可及性等背景因素,以及诸如家庭关系和照顾负担分配等文化因素如何可能影响照顾经历。然而,关于这个主题的跨文化研究数量有限,且几乎全是定量研究。

目的与方法

从生态文化视角出发,我们基于访谈的研究旨在探索居住在各自国家的澳大利亚(15位)和意大利(11位)自闭症儿童家长的经历。

结果

分析确定了三个主要主题。 , ,以及 。

讨论

我们的比较方法揭示了两组参与者之间的共性和差异。相似之处支持了文献中先前确定的特征:父母的情感和身体负担以及对父母身份的积极影响。差异涉及诊断过程、与卫生专业人员的互动、自闭症对家庭动态和父母观点的影响,以及赋予兄弟姐妹的角色。尽管面临相似的挑战,但这些差异揭示了意大利和澳大利亚的父母如何表达与社会和文化差异相关的不同理解。

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Quality of life in parents of autistic children: A transcultural perspective.自闭症儿童家长的生活质量:跨文化视角
Front Psychol. 2023 Feb 23;14:1022094. doi: 10.3389/fpsyg.2023.1022094. eCollection 2023.
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Global prevalence of autism: A systematic review update.全球自闭症患病率:系统综述更新。
Autism Res. 2022 May;15(5):778-790. doi: 10.1002/aur.2696. Epub 2022 Mar 3.

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