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生命末期的蓬勃发展。

Flourishing at the end of life.

机构信息

Human Flourishing Program in the Institute for Quantitative Social Science, Harvard University, Cambridge, MA, USA.

Plunkett Centre for Ethics, The Australian Catholic University, Sydney, NSW, Australia.

出版信息

Theor Med Bioeth. 2024 Oct;45(5):401-425. doi: 10.1007/s11017-024-09679-x. Epub 2024 Aug 20.

DOI:10.1007/s11017-024-09679-x
PMID:39162937
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11358345/
Abstract

Flourishing is an increasingly common construct employed in the study of human wellbeing. But its appropriateness as a framework of wellbeing at certain stages of life is contested. In this paper, we consider to what extent it is possible for someone to flourish at the end of life. People with terminal illness often experience significant and protracted pain and suffering especially when they opt for treatments that prolong life. Certain aspects of human goods, however, that are plausibly constitutive of flourishing-such as meaning and purpose, deep personal relationships, and character and virtue-can be uniquely realised when life is ending. We argue that there is a qualified sense in which one can flourish at the end of life but that one must make important modifications to the criteria implicit in conventional conceptions of flourishing. We close with a discussion of the empirical assessment of wellbeing at the end of life and explore the possibility of introducing a flourishing measure in palliative care practice.

摘要

繁荣是人类福祉研究中越来越常见的一个概念。但是,在生命的某些阶段,它作为福祉框架的适当性是有争议的。在本文中,我们考虑一个人在生命的尽头是否有可能繁荣。患有绝症的人经常经历严重和长期的痛苦和苦难,特别是当他们选择延长生命的治疗方法时。然而,繁荣的某些方面——如意义和目的、深厚的人际关系、性格和美德——在生命即将结束时可以独特地实现。我们认为,在有条件的意义上,一个人可以在生命的尽头繁荣,但必须对传统繁荣概念中隐含的标准进行重要修改。我们最后讨论了生命尽头的幸福感的实证评估,并探讨了在姑息治疗实践中引入繁荣衡量标准的可能性。

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本文引用的文献

1
Human flourishing, the goals of medicine and integration of palliative care considerations into intensive care decision-making.人类的繁荣,医学的目标以及将姑息治疗的考虑纳入重症监护决策的整合。
J Med Ethics. 2024 Jul 23;50(8):539-543. doi: 10.1136/jme-2023-109299.
2
Terminology and the Well-being Literature.术语与幸福学文献
Affect Sci. 2022 Oct 11;4(1):36-40. doi: 10.1007/s42761-022-00153-2. eCollection 2023 Mar.
3
What does it mean to flourish? Piloting the flourishing measure with adolescents and young adults with mood and anxiety disorders.繁荣意味着什么?用情绪和焦虑障碍的青少年和年轻人来试行繁荣衡量标准。
Clin Child Psychol Psychiatry. 2023 Oct;28(4):1612-1622. doi: 10.1177/13591045221143898. Epub 2022 Dec 5.
4
Care for well-being or respect for dignity? A commentary on Soofi's 'what moral work can Nussbaum's account of human dignity do in the context of dementia care?'.关注幸福感还是尊重尊严?对苏菲的《在痴呆症护理背景下,努斯鲍姆的人类尊严观能发挥什么道德作用?》的评论
J Med Ethics. 2022 Dec;48(12):970-971. doi: 10.1136/jme-2022-108725. Epub 2022 Nov 14.
5
Vulnerability and Resilience: Phenomenological Analysis of Cancer Patients Value Directives.脆弱性和韧性:癌症患者价值观指令的现象学分析。
J Pain Symptom Manage. 2022 Nov;64(5):438-448. doi: 10.1016/j.jpainsymman.2022.07.015. Epub 2022 Aug 4.
6
What moral work can Nussbaum's account of human dignity do in the context of dementia care?努斯鲍姆的尊严论在痴呆症护理的背景下能做哪些道德方面的工作?
J Med Ethics. 2022 Dec;48(12):961-967. doi: 10.1136/jme-2021-108095. Epub 2022 Aug 3.
7
Spirituality in Serious Illness and Health.重病与健康中的精神性
JAMA. 2022 Jul 12;328(2):184-197. doi: 10.1001/jama.2022.11086.
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Forgiveness facilitation in palliative care: a scoping review.姑息治疗中的宽恕促进:一项范围综述
JBI Evid Synth. 2020 Nov;18(11):2196-2230. doi: 10.11124/JBISRIR-D-19-00286.
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The revised International Association for the Study of Pain definition of pain: concepts, challenges, and compromises.修订后的国际疼痛研究协会疼痛定义:概念、挑战和妥协。
Pain. 2020 Sep 1;161(9):1976-1982. doi: 10.1097/j.pain.0000000000001939.
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More comprehensively measuring quality of life in life-threatening illness: the McGill Quality of Life Questionnaire - Expanded.更全面地衡量威胁生命疾病的生活质量:扩展版麦吉尔生活质量问卷。
BMC Palliat Care. 2019 Oct 31;18(1):92. doi: 10.1186/s12904-019-0473-y.