Department of Radiation Oncology Clinic, Manisa City Hospital, Manisa, Turkey.
Department of Medical Services and Techniques (Public Health Nursing), Vocational School of Health Services, Manisa Celal Bayar University, Manisa, Turkey.
J Clin Nurs. 2024 Oct;33(10):3923-3932. doi: 10.1111/jocn.17408. Epub 2024 Aug 20.
The family caregivers as primary caregivers play a crucial role regarding the care of cancer patients. As defined in the literature, the care burden encompasses the negative objective and subjective outcomes including psychological and physical health problems, economic and social issues, deterioration of family relationships and feelings of loss of control that arise from caregiving responsibilities.
This study aims to assess the care burden and to evaluate the associated factors among family caregivers of cancer patients receiving treatment at a state hospital in Türkiye.
This cross-sectional study was conducted with the family caregivers of patients undergoing treatment in the radiation oncology department of a state hospital in Türkiye. The study population consisted of 350 individuals, with a participation rate of 80%. Participants were administered a questionnaire concerning determining daily living activities and identifying the caregiving burden through their socio-demographic characteristics.
The care burden among primary family caregivers while the delivery of health services was severe for 85.1% of them. The average ZBI score of caregivers was 55.92 ± 14.58. It was clarified that family caregivers' burden was influenced by several factors, including the duration of caregiving, difficulties experienced while caring for the patient, and the negative impact on their daily roles.
Our study's findings indicate the need for health professionals to support caregivers of cancer patients while over half of the caregivers were identified as having a severe level of caregiving burden. It is important to raise awareness among nurses and the oncology team with a holistic approach. In the delivery of health services, caregivers' needs should be identified first, support mechanisms should be activated and interventions should be made to meet these needs.
This study's findings highlight the need to identify and problems faced by family members during caregiving. This is important for sustainable and cost-effective holistic care.
The results of this study are reported based on the guidelines of The Strengthening the Reporting of Observational Studies (cohort, case-control studies, cross-sectional studies) in Epidemiology (STROBE).
Our study's findings indicate the need for health professionals to support caregivers of cancer patients. It is important to raise awareness among nurses and the oncology team with a holistic approach. In the delivery of health services, caregivers' needs should be identified first, support mechanisms should be activated and interventions should be made to meet these needs.
家庭照顾者作为主要照顾者，在癌症患者的护理中起着至关重要的作用。正如文献中所定义的，照顾负担包括负面的客观和主观结果，包括心理和身体健康问题、经济和社会问题、家庭关系恶化以及因照顾责任而产生的失控感。
本研究旨在评估土耳其一家州立医院癌症患者家庭照顾者的照顾负担，并评估相关因素。
这是一项在土耳其一家州立医院放射肿瘤科接受治疗的患者的家庭照顾者中进行的横断面研究。研究人群由 350 人组成，参与率为 80%。通过他们的社会人口特征，参与者接受了一份问卷，以确定日常生活活动和识别照顾负担。
在提供卫生服务时，主要家庭照顾者的照顾负担对 85.1%的人来说是严重的。照顾者的平均 ZBI 得分为 55.92±14.58。已经明确，家庭照顾者的负担受到几个因素的影响，包括照顾时间的长短、照顾患者时遇到的困难，以及对他们日常角色的负面影响。
我们的研究结果表明，卫生专业人员需要支持癌症患者的照顾者，而超过一半的照顾者被认为有严重的照顾负担。重要的是，护士和肿瘤团队需要用整体方法提高认识。在提供卫生服务时，首先应确定照顾者的需求，应激活支持机制并采取干预措施以满足这些需求。
本研究结果强调了确定家庭照顾者在照顾过程中面临的问题的必要性。这对于可持续和具有成本效益的整体护理至关重要。
本研究的结果是根据《观察性研究（队列、病例对照研究、横断面研究）在流行病学中的加强报告（STROBE）指南》报告的。
我们的研究结果表明，卫生专业人员需要支持癌症患者的照顾者。重要的是，护士和肿瘤团队需要用整体方法提高认识。在提供卫生服务时，首先应确定照顾者的需求，应激活支持机制并采取干预措施以满足这些需求。
