Oztek Celebi Fatma Zehra, Bozdag Yasemin, Boybeyi Songul Deniz, Oguz Melahat Melek, Altinel Acoglu Esma, Senel Saliha, Sahin Sanliay
Department of Pediatrics, Dr. Sami Ulus Maternity and Pediatric Health and Disease Training and Research Hospital, Ankara, Türkiye.
Department of Pediatrics, University of Health Sciences, Istanbul, Türkiye.
Front Oncol. 2025 Apr 11;15:1510099. doi: 10.3389/fonc.2025.1510099. eCollection 2025.
This study aims to validate the Turkish version of the Family-Centered Multidimensional Outcome Measure for Pediatric Palliative Care (FACETS-OF-PPC), originally developed in Germany for children with severe neurological impairments and their families.
The FACETS-OF-PPC was translated and culturally adapted following the World Health Organization's guidelines. Following expert reviews and pilot testing, the final version was completed and implemented between February and December 2021 at a pediatric palliative care center in Türkiye. Participants included family members and healthcare professionals closely involved with the patients. Exclusion criteria were age over 18, end-of-life stage, or non-Turkish speakers. Confirmatory factor analysis was conducted to evaluate the factorial validity.
The study analyzed 102 responses (51 parents, 51 healthcare professionals), revealing suboptimal model fit (X/df = 2.29; CFI=0.805; TLI=0.757; SRMR=0.109; RMSEA = 0.114). Internal consistency was adequate for the "normalcy" (w = 0.87) and "caregiver competencies" (w = 0.86) scales, but insufficient for "child's social participation" (w = 0.51), "social support" (w = 0.20), and "coping with the disease" (w = 0.50). While the Turkish version of FACETS-OF-PPC showed reliable results for certain dimensions, cultural differences and the small sample size likely affected the overall validity, suggesting the need for further refinement.
本研究旨在验证土耳其语版的儿童姑息治疗家庭中心多维结果测量量表（FACETS - OF - PPC），该量表最初在德国为患有严重神经功能障碍的儿童及其家庭开发。
FACETS - OF - PPC按照世界卫生组织的指南进行翻译和文化调适。经过专家评审和预测试后，最终版本完成，并于2021年2月至12月在土耳其的一家儿童姑息治疗中心实施。参与者包括与患者密切相关的家庭成员和医疗保健专业人员。排除标准为年龄超过18岁、处于生命末期或非土耳其语使用者。进行验证性因素分析以评估因素效度。
该研究分析了102份回复（51名家长，51名医疗保健专业人员），结果显示模型拟合欠佳（X/df = 2.29；CFI = 0.805；TLI = 0.757；SRMR = 0.109；RMSEA = 0.114）。“正常状态”（w = 0.87）和“照顾者能力”（w = 0.86）量表的内部一致性良好，但“儿童社会参与”（w = 0.51）、“社会支持”（w = 0.20）和“应对疾病”（w = 0.50）量表的内部一致性不足。虽然土耳其语版的FACETS - OF - PPC在某些维度上显示出可靠的结果，但文化差异和小样本量可能影响了整体效度，这表明需要进一步完善。
