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消费者参与卫生服务研究:对澳大利亚一家公立医院及卫生服务机构工作人员的横断面调查。

Consumer involvement in health service research: a cross-sectional survey of staff in an Australian public hospital and health service.

作者信息

Ryan Laura, Hattingh Laetitia, Carlini Joan, Weir Kelly A, Shapiro Margaret, Baglot Noela, Cardona Magnolia, Tobiano Georgia, Muir Rachel, Roberts Shelley, Sargeant Sally, Wenke Rachel

机构信息

Allied Health Research, Gold Coast Hospital and Health Service, Southport, Qld 4215, Australia.

Allied Health Research, Gold Coast Hospital and Health Service, Southport, Qld 4215, Australia; and School of Pharmacy and Medical Sciences, Griffith University, Qld 4222, Australia; and School of Pharmacy, The University of Queensland, Qld 4102, Australia.

出版信息

Aust Health Rev. 2024 Aug;49. doi: 10.1071/AH24186.

Abstract

Objective Consumer involvement is when patients (their families, friends, and caregivers) work with researchers on research projects. While health services are expected to support consumer-researcher collaborations, conducive environments still need to be developed, with limited research into how Australian health services support this practice. This study explores current consumer involvement in research activity and staff perceptions at an Australian tertiary hospital and health service. Methods Research-active employees at a health service were invited to participate in an online cross-sectional survey. It assessed experience with and confidence in involving consumers in research, the perceived value of consumer involvement, and considerations related to challenges, facilitators, and solutions to enhance consumer involvement in health service research. Results Among 83 respondents, including medical, nursing, and allied health professionals, 54 completed the survey. Approximately half had experience with involving consumers in research. Over 80% recognised that involving consumers enhanced research relevance. Identified barriers included challenges in finding (46.6%) and compensating (59.3%) consumers, as well as deficiencies in researcher skills, knowledge (32.2%), and time constraints (39%). Facilitators comprised access to experienced researchers and educational opportunities. Moreover, 87% advocated for increased support to involve consumers within health services, with the appointment of a designated consumer involvement officer deemed the most beneficial solution by 92.5% of respondents. Conclusions While individual barriers inhibit consumer involvement in research, more prominent institutional factors such as financial and technical support may determine successful and meaningful collaborations. As health services evolve towards co-design models in research, the outcomes of this study will guide initiatives aimed at enhancing consumer involvement in the research process within Australian health services.

摘要

目的 消费者参与是指患者(及其家人、朋友和护理人员)与研究人员合作开展研究项目。虽然期望卫生服务机构支持消费者与研究人员的合作,但仍需营造有利环境,而关于澳大利亚卫生服务机构如何支持这种做法的研究有限。本研究探讨了澳大利亚一家三级医院和卫生服务机构中当前消费者参与研究活动的情况以及工作人员的看法。方法 邀请一家卫生服务机构中积极参与研究的员工参加在线横断面调查。该调查评估了在研究中让消费者参与的经验和信心、消费者参与的感知价值,以及与增强消费者参与卫生服务研究的挑战、促进因素和解决方案相关的考量。结果 在83名受访者(包括医学、护理和专职医疗专业人员)中,54人完成了调查。约一半人有让消费者参与研究的经验。超过80%的人认识到让消费者参与能提高研究的相关性。已确定的障碍包括寻找消费者(46.6%)和补偿消费者(59.3%)方面的挑战,以及研究人员技能、知识方面的不足(32.2%)和时间限制(39%)。促进因素包括有机会接触经验丰富的研究人员和获得教育机会。此外,87%的人主张在卫生服务机构中增加对消费者参与的支持,92.5%的受访者认为任命一名指定的消费者参与官员是最有益的解决方案。结论 虽然个体障碍阻碍了消费者参与研究,但更突出的机构因素,如财务和技术支持,可能决定合作是否成功且有意义。随着卫生服务机构在研究中朝着共同设计模式发展,本研究的结果将指导旨在增强澳大利亚卫生服务机构研究过程中消费者参与度的举措。

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