Butola Savita, Gursahani Roop
CMO(SG)/Commandant (Med) Sector Headquarter, Border Security Force, Panisagar, North Tripura, 799260, INDIA.
Consultant Neurologist, PD Hinduja Hospital, Mumbai, INDIA.
Indian J Med Ethics. 2024 Oct-Dec;IX(4):308-312. doi: 10.20529/IJME.2024.048. Epub 2024 Jul 31.
This article highlights the importance of advance care planning (ACP) in good end-of-life care (EOLC). The judgement by the Supreme Court of India legalised Advance Medical Directives in 2018 and in January 2023, amended the procedure to make it easier. The article describes the advantages of ACP, the numerous ethical dilemmas at the end of life that it seeks to address and avoid, the latest legal procedure, the barriers, the need for awareness among healthcare providers, legal professionals as well as the public, and the need for legislation to translate the law into action. Educating citizens about their right to choose the kind of care they want at the end of life, including the right to refuse treatment, is the moral and ethical duty of all health professionals. Making death literacy and ACP a part of a public health initiative would be a major step towards meeting the obligations reflected in the World Health Organization guidelines and National Health Policy 2017, which envisage palliative care and EOLC as an integral part of Universal Health Coverage, requiring support from the government as well as the participation of civil society.
本文强调了预先护理计划(ACP)在优质临终关怀(EOLC)中的重要性。印度最高法院于2018年将预先医疗指示合法化,并于2023年1月修订了程序,使其更加简便。本文描述了ACP的优势、它试图解决和避免的临终时众多伦理困境、最新法律程序、障碍、医疗保健提供者、法律专业人员以及公众提高认识的必要性,以及将法律转化为行动的立法需求。教育公民了解他们在生命末期选择所需护理类型的权利,包括拒绝治疗的权利,是所有卫生专业人员的道德和伦理责任。将死亡素养和ACP纳入公共卫生倡议将是朝着履行世界卫生组织指南和《2017年国家卫生政策》所反映义务迈出的重要一步,这些指南和政策设想姑息治疗和临终关怀是全民健康覆盖的一个组成部分,需要政府的支持以及民间社会的参与。