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通过12步路径加强印度的临终关怀规划。

Enhancing Advance Care Planning in India through a 12-step Pathway.

作者信息

Damani Anuja, Ghoshal Arun, Rao Krithika, Nair Shreya, Gursahani Roop, Simha Srinagesh, Mani Raj Kumar, Salins Naveen

机构信息

Department of Palliative Medicine and Supportive Care, Kasturba Medical College Manipal, Manipal Academy of Higher Education, Manipal, Karnataka, India.

Department of Neurology, P. D. Hinduja National Hospital, Mumbai, Maharashtra, India.

出版信息

Indian J Crit Care Med. 2025 Apr;29(4):301-307. doi: 10.5005/jp-journals-10071-24938.

Abstract

BACKGROUND

Advanced care planning (ACP) and advance medical directives (AMDs) are vital for aligning medical decisions with patient preferences, particularly for end-of-life care. The 2018 Supreme Court judgment in India established the legality of AMDs, enabling patients to exercise their autonomy. Recent amendments in 2023 simplified procedural requirements, replacing judicial magistrate approval with a streamlined two-tier medical board system. This article proposes a culturally sensitive and practical 12-step framework for implementing ACP and AMDs in India.

MATERIALS AND METHODS

A structured and consensus-driven process was undertaken by experts in palliative medicine, neurology, critical care, and geriatrics, supported by key medical organizations. The development process included multiple iterations, public consultations, and feedback from legal and medical stakeholders. The framework integrates legal, ethical, and cultural considerations to address procedural and systemic challenges in ACP implementation.

RESULTS

The proposed 12-step pathway focuses on three phases: creating living wills, periodic reviews and updates, and executing AMDs. Key components include initiating discussions, identification and appointment of surrogate decision-makers, ensuring legal compliance through simplified procedures, and providing guidance for withholding or withdrawing life-sustaining treatments. Implementation strategies emphasize public awareness, provider training, and institutional policies to normalize ACP. Simplified legal requirements introduced in 2023 facilitate broader adoption and reduce procedural barriers.

CONCLUSION

This framework provides a practical, culturally relevant model for ACP in India, ensuring patient-centered, ethical, and transparent end-of-life care. By integrating simplified legal procedures and addressing misconceptions through education and policy initiatives, the proposed approach empowers individuals, families, and healthcare providers to make informed decisions, fostering dignity and autonomy in medical care.

HOW TO CITE THIS ARTICLE

Damani A, Ghoshal A, Rao K, Nair S, Gursahani R, Simha S, . Enhancing Advance Care Planning in India through a 12-step Pathway. Indian J Crit Care Med 2025;29(4):301-307.

摘要

背景

预先照护规划(ACP)和预立医疗指示(AMDs)对于使医疗决策与患者偏好保持一致至关重要,尤其是在临终关怀方面。2018年印度最高法院的判决确立了预立医疗指示的合法性,使患者能够行使其自主权。2023年的最新修正案简化了程序要求,用简化的两级医疗委员会系统取代了司法裁判官的批准。本文提出了一个在印度实施预先照护规划和预立医疗指示的具有文化敏感性和实用性的12步框架。

材料与方法

在关键医学组织的支持下,由姑息医学、神经病学、重症监护和老年医学领域的专家开展了一个结构化且由共识驱动的过程。制定过程包括多次迭代、公众咨询以及法律和医疗利益相关者的反馈。该框架整合了法律、伦理和文化考量因素,以应对预先照护规划实施过程中的程序和系统挑战。

结果

提议的12步路径聚焦于三个阶段:制定生前预嘱、定期审查和更新以及执行预立医疗指示。关键组成部分包括启动讨论、确定并指定替代决策者、通过简化程序确保法律合规,以及为中止或撤回维持生命治疗提供指导。实施策略强调公众意识、提供者培训和机构政策,以使预先照护规划常态化。2023年引入的简化法律要求促进了更广泛的采用并减少了程序障碍。

结论

该框架为印度的预先照护规划提供了一个实用的、与文化相关的模式,确保以患者为中心、符合伦理且透明的临终关怀。通过整合简化的法律程序并通过教育和政策举措消除误解,提议的方法使个人、家庭和医疗保健提供者能够做出明智的决策,促进医疗保健中的尊严和自主权。

如何引用本文

达马尼A,戈沙尔A,拉奥K,奈尔S,古尔萨哈尼R,西姆哈S, 。通过12步路径加强印度的预先照护规划。《印度重症监护医学杂志》2025;29(4):301 - 307。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/abd9/12045040/b51af4255b89/ijccm-29-4-301-g001.jpg

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